Post Vasectomy Pain Forum

Unrelenting, unspeakable, chronic pain. I've tried almost everything... reversal is next

Here’s my story… I got a Vasectomy 4 months ago today. It’s been the worst 4 months of my life. I cannot even describe the pain I have been through. The constant excruciating pain is unrelenting and excruciating. I would walk to the ends of the earth for a cure, if only I could walk for more than 100 meters without experiencing even more pain. This has ransacked my physical, emotional and mental health. I have had suicidal thoughts - anything to escape this pain.

I didn’t know this was a possible outcome or that PVPS was even a thing until I found reddit and this forum. How was this not disclosed to me as a potential outcome from Vasectomy? This is unconscionable and a failure or modern medicine at every level and the lack of disclosure is unethical. I am considering suing the urologist who did this to me for lack of sufficient disclosure.

I cannot sit for more than an hour without exacerbating the pain. I can’t walk without pain. I can’t pick up my kids. I can’t exercise. I know I am preaching to the choir here, but it does feel good to type it out and know there is a community of people who will read and actually know what I am experiencing.

Afer my surgery, the discomfort never went away, but the real, terrible pain didn’t start until 4 1/2 weeks post surgery. It came on like a freight train during intercourse one evening and took my breath away and sent me to my knees in agony. And it never went away.

I feel like I have tried everything except surgical intervention and the only things that seem to give real help are are narcotic pain medicine, THC and Lyrica. They are all temporary fixes, or course. Here’s a list of things I have been doing to try and get relief and healing and pain reduction:

Supplements/Vitamins:

  • Papaya Seed Powder - No noticeable effect/relief
  • Turmeric - No noticeable effect/relief
  • Various other supplements and vitamins - No noticeable effect/relief

Medications:

  • NSAIDs (Ibuprofen, Diclofenac, Naproxen, etc) - No relief
  • Hydrocodone - Almost no relief
  • Oxycodone - Blunts the pain. This is the best medication for short term relief. Very concerned bout long term dependence or addiction.
  • THC - aka Medical Marijuana - This helps to reduce the pain. I take it at night because the levels I have to take to get the pain to subside also make me very sedated and unable to focus or do my job well. It definitely helps me to sleep.
  • Lyrica - I noticed pain reduction and especially reduction in referred/radiating pain in the abdomen pretty soon after taking this. Again, I have concerns about being on it long-term, and I have major brain fog and slurred speech, but it does seem to help with the pain.

Clothing:

Other things I’ve tried or considered:

  • Ice - Almost no relief
  • Ultrasounds - I’ve had two and they don’t show anything particularly damning except for some mind swelling in the epididymis and varicose veins.
  • Nerve block - I had one scheduled, but backed out because I don’t trust the pain clinic and have read too many stories of the blocks making things worse unless they are done by a specialist on the spermatic cord.
  • Prayer - No immediate reduction of pain, but some sense of peace and calm

So that’s where I’ve been. I have a reversal surgery scheduled for 3 weeks from now. That bit of hope keeps me moving from one day to another. I’m desperate for it to work and if it makes things worse or doesn’t eliminate this pain, I’m honestly not sure what I will do. By the time I get the reversal, I’ll be 5 months post vasectomy. I have had two urologists tell me I should wait until 6 months, but frankly, I’m not sure I can make it that long, and I’m desperate to just try and get “put back together the way I was” or at least as close as possible.

Am I missing any other options? If you were in my shoes would you continue to wait longer or proceed with reversal now?

I’ll post updates here, in hopes that it will help someone else in a similar position.

2 Likes

Please research Tart Cherry and NAC supplements for nerve pain. I swear they have worked for me. Brought my pain down a ton.

1 Like

I can definitely relate to that.


You already know that I am not going to encourage you nor discourage you to do anything. I want men to go with their gut. I want them to make informed educated choices and decisions for themselves. You gotta weigh out everything for yourself and do what is best for you, not what is best for the next guy. This is your life you are talking about, not somebody else’s. Guys like me certainly won’t flame on you for doing what you think is best for you.

Bottom line - I tell pretty much everyone that. If you have a hunch that you will be wishing you were put back together 6-12+ months from now, do what is best for you. I have heard of pain guys having reversals in the ~2-4 month post vas timeframe, and the idea that that you have to wait X amount of time certainly varies VR surgeon to VR surgeon.

I also tell everyone that is considering having a reversal to get it right the first time. Don’t rush into anything out of desperation and make another critical wrong choice that you will later consider another serious mistake because you didn’t understand so much about so much regarding reversals.


Thanks for sharing your story @phoenix. Keep us posted.

Hey @phoenix… A couple more things that I want you and everyone else to be aware of.

Quote

“Since PVPS causes significant morbidity in affected men, some warning about this complication should be part of the informed consent for vasectomy. Future research should focus on the role of different vasectomy techniques on the incidence of PVPS, the effects of early vasovasostomy on the course of PVPS, risk factors for PVPS, and the development of more effective therapies. Advocacy for insurance coverage for treatment of PVPS with vasovasostomy may help more affected men obtain relief”.

https://www.vasectomy-information.com/post-vasectomy-pain-syndrome-scientific-review/#Discussion

That paragraph is from the linked published paper that was co-written by my earliest PVPS mentor. I would guess that the vast majority of people will not recognize who that person is, or how important that person was to the online pvps scene many years ago. I do not see the published date on the document, but it’s was written somewhere around ~2008-09. I just wanted you and everyone else to be aware of some of my earliest mentors thoughts.


Assuming you haven’t already read all of the relevant content on the website below, I will post a link to it.

https://www.dadsagain.com/articles/treatments-pvps/

I will note that the majority of the related or relevant information on that website was updated very recently. I have been watching the online pvps scene for a little over a decade and the contents within the link above is the most comprehensive down to earth PVPS read that I am aware of at this time. It was written by someone who is truly in the know about this stuff.


There is always more to know…

I’m at approx month 9 after vas now. In month 1-4 i “was in your shoes”, just terrible pain. I was really desperate to get surgery or anything. I haven’t had any surgery, and for me the pain has died down to much more manageble levels. There’s still some discomfort, but the excruciating pressure and pain is gone. Right now I don’t want surgery, and I can function day to day on conservative treatment. I’m still debating if I should attempt a surgery in the future some time, but the risk/reward is tough to assess.

Thanks @RingoStar for posting the link, I find it very useful

1 Like

Thank you for posting this @RingoStar
Those links are super helpful.

I do wonder if there is a benefit to having reversal done sooner rather than later for PVPS.

1 Like

I had my original vasectomy on 1 November 2019 and the reversal four months later on 27 February 2020. The results turned out well for me. I’m pain free with some residual discomfort for a few seconds here and there one day or another, but not pain.

1 Like

I wanted to post an update…

I had reversal surgery with Dr. P in Florida.
I researched every specialist I could find in the country, talked to a few and felt most comfortable with him (by far). He’s really kind and sympathetic, has a stellar reputation, leading edge equipment and a really helpful and proactive staff.

I am a few days post-reversal now.

Now that the block from surgery and numbing has worn off, I have pain, but it’s a different type of pain now. Hard to explain…but this now feels like inflammation and not so much congestion. Still some referred pain into the lower abdomen and pelvis but that has eased a lot.

Dr. P said the pain will probably get worse before it gets better and that I really should not expect pain reduction until 1 to 2 months post surgery. So patience is a virtue I will continue to employ.

I’m taking my time and trying to just be careful and keeping my thoughts positive and hopeful. If anyone has suggestions for how to aid the recovery process, I would be very thankful.

1 Like

@phoenix Hey man, I am 4 weeks post reversal today, and mine has helped me. Feel free to read my reversal update post.

If you are able too, just take it easy the first couple of weeks. I took 2 weeks off work, and even though I probably could have returned to work the second week, I think taking that extra week off helped.

Ice the first 24-48 hours then apply some heat. Not sure if they wrapped you up or not, but I was wrapped up tight when I woke up, and I left everything wrapped up for 2 days while I iced 20 minutes on and 30 minutes off the first couple of days.

I had some pretty intense left sided shooting pains the first few days that originated at the location of my granuloma site, but they gradually got better and stopped all together towards the end of the first week.

Hang in there and take it easy. If you got any specific questions, feel free to ask. Good vibes being sent your way brother.

2 Likes

@Lee1985 thank you for the update and info.
I’m feeling hopeful even though I’m still in quite a bit of pain.
I read your most recent thread with details about your reversal. Interestingly, like you, the second night after my surgery, I also had morning wood. It’s been 5 months since I’ve experienced that.

I still feel, what I think is, congestion pain. It was gone for 2 days after reversal, but has returned somewhat. I am hoping that starts to go away soon, perhaps after I am able to ejaculate.

When did you notice that congestion pain dissipate for you?

My Dr said to not expect much relief for a month or so. So I’m just focused on patience right now.

Even though I am still feeling pain, my wife and close friends who have seen me post-op have all said I look healthier and seem more relaxed and happier. And that alone makes me feel good about things.

Day 2 for me had a very noticeable drop or completely none existent in the majority of my post vasectomy pains like congestion, prostate area pain, hip/lower back pain and burning in my perineum, groin, thigh.

Around day 8 I noticed a uptick in the congestion type pain, but went away when I started to ejaculate.

1 Like