Just making my progress post to give the experiences since the vasectomy and after reversal, which all being well assuming no cancellations and no problems during the procedure - will be on the 26th August.
Vasectomy was 24th October 2020, from what I’m aware it was a standard open-ended vasectomy following NHS protocols done by a GP trained in this one procedure - No major issues after the vasectomy other than my left testicle was very sensitive if it was knocked, would be much more sensitive and sore than a healthy nut that was knocked
Feb/March 2021 - Epididymitis in left testicle, whole testicle and epi were swollen and red - A&E urologist prescribed ciprofloxacin, this seemed to clear it - Back to testicle just being sensitive if it was bumped
April 2021 - Mild left kidney pains last 1-2 minutes at a time, 1 week later Suspected gastric flareup(first time in my life), burning under left rib, during hospital visit doctor inspected my testicles and moved or poked something that didn’t feel good - severe pain in my left Epi/Cord, another course of ciprofloxacin seemed to alleviate it but I did also spend the majority of 5 days in bed with no activity around my testicle going on
May 2021 - Severe epi pains again in left testicle, seen consultant urologist who checked my tests so far(basically every organ ultrasounded and CT of kidneys, multiple bloods, stools and urine) and diagnosed me with PVPS and suggested reversal or epididymectomy, naturally I opted for reversal, unfortunately it has since come back that despite it being for pain and not fertility, the NHS will still not allow reversal.
Pains have never fully subsided since this last flare up - usually for the most part I get random bouts of minor dull ache in left epi and left kidney(not always at the same time), I receive the same pains in the right testicle and kidney but so minor you wouldn’t even consider taking pain killers - I am usually able to these issues by simply not poking around my testicles and taking paracetamol(tylenol) and reducing movement/ warm baths, however since the last flare up ongoing still now seems to be from when I over-inspected my epi and testicle in the shower 6 days ago, this has led to a constant dull pressure tooth-ache like feeling in my left epi/cord area that has yet to fully subside.
During these major flare-ups my pelvic floor goes to shit, walking during this will give me lower back ache and I have to keep the testicle well supported as if the epi bumps off my trousers or anything such as when bending over it will obviously increase the dull pressure ache - These flareups typically subside in 3-4 days but I guess I went too far with my inspection this time.
So, long writeup sorry want to be informative for people googling in future with comparable symptoms and hoping I can provide a cure with reversal a few weeks from now, overall issues that I can pinpoint directly to the PVPS:
Dull pressure-like ache in my epididymis area, the location specifically of this is it you put your finger under the base of your penis above the sack, then run your finger about 2-3cm from the base of penis towards testicle/epi on the left side, the dull ache is here, it can also be felt on the back of the testicle side of the epi, I rarely experience pain in the actual testicle from what I can tell, though it does seem slightly engorged(but not red) when these flareups happen. edit - To add, the pain moves from the head of epi/cord area to the tail of the epi around 1-2 hours after ejaculation, the epi feels around twice the size and goes hard - further edit, when abstaining from ejaculation for 24 hours, the epi is no longer hard but still semi-swollen and tender - but the dull ache moves in to my sperm cord/vas and it is, “thicker than a bowl of oatmeal”
Kidney dull aches, these seem to be worse on days where I have ejaculation, but I have no pains actually during ejaculation, they seem to begin roughly 1-2 hours after
The pains can sometimes go up the inside of my groin/hip area and lower abdomen but this is very rare for me personally and never causes much issue or stress
General heightened anxiety and surges of depression in burst windows as the PVPS seems to have settled in - Perhaps this is just me now as a result of the pain and worry for the last year though I never experienced mental health problems before this, but at the same time I never experienced severe chronic pain either, or perhaps it is to do with fluctuating testosterone, never had testosterone tested before or since vasectomy - I do not have hair loss and things, if anything I have hair growing out of weird places now
Low libido and poor orgasms even when I do not have pelvic floor weakness during bad flareups
Pain is directly related to the touching of the epi/cord area, the only other odd thing I notice is my issue testicle(left) is at a very horizontal angle, however multiple GPs, urologists and ultrasound has ruled out torsion - perhaps it was always at a bit of an angle and inflammation from the epi or congestion in the cord can be pushing it further.
So yes that is me, my life* has been ruined since this procedure, unbearable pains and discomfort, mental stress and anxiety etc.
The surgeon who has agreed to the procedure seems very qualified and certified with the relevant urological board, also carries out between 10-20 reversal per month including ones for pain and uses a multi-layer technique, I am confident and happy with my choice based on reviews and his experiences - I will not name him as of yet as I would like to get the procedure done first. Specific details of what will be done really is general reversal:
Expose the vas, remove scarred tissue, remove granulomas, check vas and epi for healthy structure, plumb vas-vas as long as there are no problems(not expected given my short time snipped), plumb vas to epi as a last resort if too many blockages or damage to vas - if epididymis is mince meat for whatever reason it will be detailed in report but not removed during procedure.
Surgeon has calculated roughly my success for total pain relief/improvement in pain is around 70%, and around 90% for regaining fertility.
So yes that is my story, again sorry for monstrous writeup - I will follow up again in this thread once the procedure has been carried out. Now roll on 3 weeks of hoping and praying for no spontaneous cancellations, the reversal being done with no complications, and it totally curing me of this life ruining condition, or at least vastly improving it, my odds are good but there unfortunately is never a guarantee.