Thanks all for your replies. I think I’m going to hold out as long as I can, although, as all you know, every day with PVPS feels like a week, each week a month, each month a year, etc., and I’m not exactly the most patient person to begin with so this is pretty much living hell.
If you told me removal = 100% relief (or hell, even 80%) I’d do it in a heartbeat, but it seems like in many cases it causes more issues (although to be fair, where it’s worked people probably aren’t as active on this forum because they’ve gotten on with their lives, so I figured responses would generally skew negative).
Most doctors I’ve spoken with strongly are advising me against orchiectomy, so I’m going to try to be patient and continue with pelvic floor physical therapy (which so far has made me feel even worse after 4 sessions over 3 weeks, but I’m willing to keep it going for a few more weeks to see what happens). I have a couple of pain management appointments coming up too, perhaps I’ll have some success with different nerve blocks - still haven’t really tried GF or Pudendal.
A holistic doctor also has me taking some parasite killing supplements, lions mane, and BPC-157 injections (just a week so far), but I kind of think this is a a bunch of crap…just trying it all out of desperation.
So I’m really trying to take this day by day and pray that one day some improvement starts. My family had to cancel a Disney Cruise in July because of this - now rescheduled for December after Christmas.
So God I pray I am better by then because if I have to tell my 2 kids we have to cancel the Cruise again (6 months later!) it will break my heart and theirs (sorry if this sounds pretentious!).
Frustrating thing is I’ve had periods of feeling almost 100% over the last 2.5 years since the vas…but if I have to live the rest of my life in constant fear of 6-8 month long flare ups, I am not sure I wouldn’t just end my life…I’m seeing a psychiatrist too but the reality is, my pain is causing my anxiety and depression and no matter what advice he gives, it’s not going to cure my physical pain. I have (half-dark-jokingly) told my wife to find a new husband because I’m going to kill myself if I have to live the rest of my life this way. (in reality, I won’t do that, but many dark thoughts keep seeping into my mind).
Anyways thanks all again, it’s nice to have this forum. I wish we could somehow form a more public movement, get the word out there to curb people from doing vasectomies. Tell your wives to deal with an IUD…not worth the risk of ruining your hubby’s life. Some sort of anti-vasectomy march or something to get the awareness out there!