Hi all I’m Justin a male 43 yoa in Leicestershire I’m a dad of five kids. Disabled now due to pvpd.
A gamer and Xbox ambassador.
Here we go April 2017 had my vesctomy done in coalvile. During this so called easy OPP the Dr crushed the top part of my testical the area where the top two nerves go into it . He upped my landocane and looked at the nurse for reasuince . Telling me he clipped the testical with the clamp .
At no time have I had any bad press or stats I wAs told the chance of pain was about 1/250 wow that’s wrong hay since I have been here and talking to NHS and USA doc it’s more like 1/5 shock never in my life did I see those figures by the NHS .
Well now I lost my job a year ago I have regular meds morphine gabapentine paracetamol tramadol that’s the pain then landocane gell a tens machine.also get accupunter every 3 months pain blocker in both nerve beds just off the top of spine .
I have sticks to move around home some adertations grab rails low access shower a turn table and grab Handel for car.
I have spoken in depth with a urologists and pain speclist they both say the figures for NHS reversal to fix issues is low as only works for a short time so not had it done.
I hear Botox in USA works for 3 months tho accupunter dose work it’s not a cure all my own doc now says to wait for the pain speclist to sort me out .
Yea great NOT.
My partner copes just once a month we hit a hard wall emotions flare not just PMT . But she has me and kids to look after not fair on her but she is worth every minute I get with her .
I take a little blue pill to help me stiff do the things adults do …lol
Why do I write here well I write here Reddit FB Twitter ext so men know they got to talk about it I want to see NHS look at its approach again …
Yea hard work but I talk to ppl around the world about pvpd and pvps on above sites and Xbox yea I’m on there a lot as a Xbox ambassador I help others so guess it’s a hobby .
Most important things to me …
My kids , my partner , my cats, after that model kits and Xbox you need to have a good hobby BN to get you though one of my other small goals is to find the true figures for pain here .
One option is a ocoloptamy not worth it they take the ball out and then u get pain plus’s phantom pain.
Kinda finding a bad hole on every suggest tria. Any other ideas welcome us men need to stand up to the NHS to get the right resurce and resources .
Thanks to grocery aid for there advice
Thanks likes and other chats welcome