I want to start this topic being well aware of different threads on the past. However, I am not interested in what specific product one could get where, etc., but about experiences with long-term consumption of medical cannabis prescribed by doctors.
I seriously consider giving it a try instead of my opioids and pregabalin, as I’ve read a lot of fantastic stuff about medical cannabis treatments.
I really wonder if anyone has tried that longer term, i.e. more than 3-6 months, and can report on
a) whether that has solved the pain for good
b) how much it has reduced pain while taking it
c) how long people actually took it
d) what side effects were encountered
In my humble opinion you’d probably benefit more in diagnosing what kind of pains you have, whether it’s nerves or imflammation @Juno.
Agree. Any idea how to differentiate? Would appreciate hints as this is what I ask myself every day
Form what I’ve learned, not easy at all @Juno. In my situation, I had pains and aches all over pelvis area. Sharp shooting pains in the base of my penis and along spermatic cord in the inguinal canal area, dull ache in my testicle and visibly swollen epidydimis. For me it was imflammation and congestion, I started taking papaya seeds, did a lot of research into low inflammation diets and supplements, and 3 months later I have improved a lot. By all means, this is just my individual case, and not guaranteed to work for you.
I know that @raising4girls tried nerve medication, maybe he will be able to help you with what he knows.
I mentioned before that I had a sharp stinging pain right at the surgery. I take this as an indication of nerve pain. Then again, I haven’t had these sharp shooting pains lately a lot; there were some right after the surgery, when lifting smaller items, and there was a hell of lot of pain when I got the bupovacaine injection into the spermatic chord near the testicles, and a few days afterwards. But mostly it’s the “kicked in the nuts” feeling.
I also noticed, when I swapped Tapentadol for Tramadol, that I got this hot burning sensation in my abdomen; now that I am back to Tramadol, it’s again more the dull pain in my testicles. I am not sure what’s going on, wonder if anyone had something similar experienced. The block did not work at all, I could feel the area numb, but the pain was sitting deeper.
I do take papaya seeds for 2 weeks or so, I think it has zero effect. I take it should typically bring relief for congestion pain, so there’s another indication that might not be what I have. I do get intensified pain after ejaculations, but I really don’t have a lot these days.
My theory right now is, after reading a good post by Aschiro ([Pelvic Floor/Bulbospongiosus Pain],(//www.postvasectomypain.org/t/pelvic-floor-bulbospongiosus-pain/2511/25)), that I could have damage to the pudendal nerve. I am doing some stretching exercise, they bring short-term relief. I don’t else what to do right now other than waiting.
Papaya can take up to 3 months to start working as some reported so might as well keep taking it. Nothing to loose. Nerves settle too, have a read @Kyvas story, think he was similar to you too.
Can I just chime in here and add you might want to try Kratom aswell as cannabis I found it to be better for pain relief…its legal in some places and others you will have to find online to try it.
I have tried THC-Oil which supposedly can bring pain relief without actually giving a high.
At the same time I was on relatively high doses of gabapentin and did not actually give the THC-oil a serious try.
Now i am more or less of the gabapentin I should Probably consider starting up on the THC-oil again.
I’m guessing you mean CBD oil, because THC oil will most certainly give you a high/buzz.
Yes!! CBD oil it is
From “An overview of the management of post-vasectomy pain syndrome” Wei Phin Tan, Laurence A Levine
Initial pharmacological therapy should include non-steroidal anti-inflammatory drugs (NSAIDs) over a period of 2–4 weeks. In our experience, NSAIDs typically work best in patients who experience PVPS <1 year from their vasectomy.
Failing NSAIDs therapy, we recommend using a tricyclic antidepressant (TCA). There has been no clinical trial showing any efficacy in using a TCA for PVPS . Sinclair et al. found that 66.6% of patients with idiopathic testicular pain had improvement of pain in a trial of six patients after 3 months with nortriptyline therapy. However, a subgroup analysis of patients with PVPS did not show the same improvement .
Limiting factors of this study include a small sample size and its retrospective nature. However, TCA has been shown to treat nerve pain in patients with diabetic neuropathy as well as postherpetic neuralgia. TCA works by inhibiting the reuptake of norepinephrine and serotonin in the brain. It also inhibits sodium channel blockers and L-type calcium channels that are thought to be responsible for its analgesic effect by modulating first order neuron synapses with second order neuron synapses in the dorsal horn of the spinal cord. Tertiary amines ( amitriptyline and clomipramine ) are reported to be more effective for neuropathic pain compared to secondary amines (desipramine and nortriptyline). However, tertiary amines are also associated with more sedation and postural hypotension. TCA may take 2–3 weeks from initiation of therapy to be effective. Anticonvulsants have also been shown to work for neuropathic pain. The two mainstays of anticonvulsants used for neuropathic pain are gabapentin and pregabalin due to the paucity of side effects in the older generation anticonvulsants. There has been no clinical trial showing any efficacy in using anticonvulsants for PVPS. Sinclair et al. found that 61.5% of patients with idiopathic testicular pain had improvement of pain in a trial of 13 patients after 3 months with gabapentin therapy. However, a subgroup analysis of patients with PVPS also did not show any improvement of pain .Limiting factors of this study have been discussed above and include a small sample size with only 13 patients on gabapentin having complete data and an even smaller PVPS group of four patients. However, gabapentin has also been shown in large, randomized, placebo-controlled trials to relieve pain in patients with diabetic polyneuropathy, postherpetic neuralgia, and other types of neuralgia.The proposed mechanism of gabapentin as an analgesic is that it modulates the α-2-d subunit of N-type calcium channels which affects the afferent pain fibers. Long-term treatment with narcotic agents is not recommended as this does not address the underlying pathological condition and carries the risk of addiction. We occasionally offer a short duration of narcotics for temporary relief of PVPS.
Originating around 100 BC in China, acupuncture is regarded as the earliest form of neuromodulation. It is considered a form of alternative medicine and continues to remain a key component of traditional Chinese medicine. This modality may be recommended for patients with chronic genitourinary pain. There are no published trials on acupuncture for PVPS.
Pelvic floor therapy may also benefit patients with pelvic floor dysfunction. This is particularly beneficial in patients who have muscle dysfunction or myofascial trigger points. In our practice, we routinely recommend specialized pelvic floor physical therapy to patients with PVPS if a positive 360° digital rectal exam is identified.
Something to consider when taking CBD https://youtu.be/dEcJJhyxbDE
There was an article on ESPN July 11 about golfers using CBD for inflammation and sleep. Any updates from anyone trying this with either positive or negative outcomes?
I haven’t even started to take my 1:1 solution as I want to wean off all other meds first, to establish a baseline. Neither am I sure at this point if I want to try another drug or go down the surgical route instead.
I have some experience with CBD oil for lower back pain and testicular pain.
I started researching CBD oil earlier this year. I found a product I was happy with regarding where the plants were grown, how they were grown, how they were processed, the final processing, etc. I wanted a quality legit product. I don’t have the time or money to be horsing around with BS snake oil products. It took some time, but I eventually found a mfg that meet my expectations.
I started with 25 mg gel caps of pure CBD oil. In other words, it contains no other cannabinoids, zero trace amounts of THC, etc.
I took 1x - 25 mg gel cap per day for several weeks, and wouldn’t say I noticed much difference. So, I bumped my dose up to 2x - 25 mg gel caps per day, and stuck with it for several weeks. At that point, I’d say something was different. I was trending better all the way around.
Before I ran out of product, I reordered, but that time I ordered 50mg gel caps. Regarding what I’ve been able to find online, I haven’t seen any gel caps stronger than 50mg each. So, 50mg 1x daily is a relatively high OTC dose.
I’ve stuck with the regiment since I began. I’m still taking 1x - 50mg daily of the same product, same mfg, etc. I haven’t had any side effects, other than ‘perhaps’ oilier skin for several weeks into this.
Am I sleeping better? Perhaps. Less stressed? Perhaps. Noticeable better overall trend pain wise? I’d definitely say yes, but in my case, it’s a bit complicated because at the same time, I also started taking some other supplements for my back pain, which was the number one reason I started taking the CBD oil to begin with. My residual pvps - testicular pain issues were number two. I figured two birds, one stone. Just FYI, the other natural supplements I’m taking for my back do not have antiinflammatory properties, and are not considered pain relievers.
I’m about to switch brands and blends over the next week or so. I already bought another product that has the same mg of CBD per dose, but contains other cannabinoids, including trace amounts of THC. Not enough to get you high, but enough to ‘possibly’ fail a drug test given my dose, but IDK for sure.
I’m looking forward to trying the new product, and will post something about my experience with it once I’m ready to post my experience. Will it be any different than what I’m currently taking? I have no idea. The data I am giving you now is based on ~4 months of daily experience with one product, from a single mfg.
Why didn’t I get a medical marijuana card, and do this via a local medical cannabis doctor? Because in my state, things are progressing slowly in this area of expertise. I live in a legal medical marijuana state, but things haven’t caught up to other states such as Colorado, Oregon, California, Washington, and so on. I also avoided the middle man $, and taught myself a lot in the process. To each their own.
Why gel caps, and not the liquid? Because I know of others, including my wife, that say the liquid gives them severe dry mouth. I haven’t noticed anything of the sorts with gel caps.
Have I tried medical cannabis? Yes. Does it help? Yes. Has it ever made me worse? It’s complicated. In my case, my experience with medical cannabis (the kind that gets you high) would be another long winded post. I’m trying to stick to my experience with CBD oil in this post.
So far, and overall, CBD oil seems to work. I have been trending better for several months. It reduced the need for pain relievers for my lower back (so far). My testicular pain has been almost nonexistent (daily, weekly, bi-weekly, monthly, etc), with the exception of occasional short lived flare ups that I get through one way or another. I still keep some celebrex on hand for my back mostly, but for my balls to. CBD did not totally cure me, which based in my research, is pretty typical for pain patients with a lower back condition like I have.
The website I was purchasing my initial orders from has a multi step CBD oil doasge calculator on it. If you want to know what brand/s, etc, I have been taking/ordering, send me a PM. You will likely find the CBD dosage calculator in the link below handy.
I hope this helps someone.
Just chiming in. I’ve had great experience with CBD oil for sleep and anxiety and it worked great for those things. I’ve not been able to use it for the chronic pain as fertility doctor suggests not using it until we’re pregnant. Be sure to get full spectrum hemp oil from aerial parts with a reasonable mg/dose. I have had reasonable success with multiple brands, but a really good one is R+R medicinals. They seem to really care about quality and I think it’s run by 3 armed forces vets.
I didn’t notice any difference between the OTC pure CBD oil from Medterra and the full spectrum CBD oil from cbdMD. In fact, the product I got from cbdMD didn’t seem to work as well.
From there, I considered everything, including if I was experiencing some sort of placebo effects.
I shared my experiences with OTC CBD oils with my GP. He suggested that I get a medical marijuana card and try some different and perhaps better products. So, 9-10 months ago I did just that.
Being a long time cannabis flower user, and having my own experience with OTC high grade CBD oil/s, I was a bit skeptical about what to expect next.
Getting a legit medical marijuana card gave me access to a wide array of different products. My cannabis doctor is a legitimate doctor. He actually considers the majority of medical cannabis products to be recreational. I found that odd, but listened to his advice. His advice was cannabis oils in a liquid or gelcap form. He suggested that I try various CBD to THC ratios.
Initially, I tried several different products. Some of the products I initially tried were way to strong. The majority of the 1 to 1 ratio products specifically were not for me. I do have a bottle of 1 to 1 ratio (5mg CBD to 5mg THC) for a really bad day, but rarely take it because it’s just to much THC for me.
I found the 5 CBD to 1 THC ratio to be optimal for me (8mg CBD 2mg THC). It comes in a gelcap. It’s great for pain, anxiety, and sleep. I average 1-2 gelcaps per day - everyday. Given the kind of work I do for a living, I generally don’t take this product while at work, but I can definitely work while taking it.
Another product I like is a 30 CBD to 1 THC liquid. Each 30ml bottle contains 870mg CBD and 30mg THC. It’s a rather weak product compared to the one above but it definitely works. I generally take this product when I have to be more social and on top of my game. I also take it as a pre or post boost to the 5-1 product above.
I still take an occasional 50mg CBD gelcap of the OTC Medterra product as well. I do that on top of the products above. I haven’t found a point where to much CBD seems to have a negative impact for me personally.
Incase someone wonders why I don’t get all of my CBD oil products from a local medical marijuana dispensary, the answer is simple - it boils down to cost. The medical cannabis industry in my state still has growing pains. The medical cannabis products are still rather expensive, and not covered by insurance.
Anyway, for those that suffer from pain, depression, anxiety, sleep disorders, etc - CBD oils, THC oils, CBD/THC blends specifically, medical cannabis products, etc, may be beneficial to you. Given my personal experience, I can see how it’s possible for one to break the cycles of pain, anxiety and other related disorders with such products.
Hope that helps.
I’ve been taking 10% CBD oil for the last year, can strongly recommend for anxeity and depression, came off antidepressants totally after first month of using it. I did notice improvements in pains as well. Sleep is best its ever been, I fall asleep instantly, very often with lights on and ipad on top of me.
The one I’m using is here https://www.daiba.uk/shop/cbd-oil-10-1000mg-raw/
I have found topical application of marijuana cream helpful for neuropathic pain, though there is admittedly little literature supporting this. One product available in WA is Wild Mint, though there are several others. I haven’t seen effects on cognition or mood like I did with systemic medication.
Since this topic is active again I’ll post.
I’m a long time recreational user. I always felt it was good for my mood, sleeping, and helpful with minor pain. Now that I’m suffering from PVPS it certainly has a place in my now overflowing medicine cabinet.
When I first developed pain, which was the wrost for me at the onset, it was not helpful. I was freaking out and my anxiety was sky high. Marijuana was counterproductive and seemed to even make the pain worse at times. Since coming to terms with this condition its been very helpful.
When it comes to marijuana (MJ) for pain I think you want indica or indica dominant hybrids. It’s not well understood, but those are strains are known to produce more “body buzz” and sedating effects. The downside is they don’t mix with work or many activities. My experience is that they are definitely better for pain even though I prefer a strong sativa with my coffee in the morning. The tangerine dream strain is awesome if you can find it. A good bud tender in a legal state should be able to steer you towards the right stuff. Also the indica vs sativa difference for me is much more pronounced when smoked or vaped rather than in edible form. Edibles usually give me more body buzz regardless of strain.
Regarding CBD, it’s been helpful but not a miracle. A high strength CBD pain cream has been very effective in releasing a “tight sack” when applied right on my scrotum. It seems to reduce cord pain if applied for a few days, but that could be a secondary effect from releasing the tight sack. It has helped a bit with nerve pain in my inner thigh but PT exercises are way more effective. Taken orally it helps me a little with anxiety and releasing pelvic tension. In my experience oral CBD works much better with THC as there is some complementary effect. It takes the edge off the high, which is probably helpful for most pain users that want to remain functional. CBD derived from MJ is more potent compared to CBD from hemp in non-legal states. I don’t know why, just speaking from experience. CBD from hemp is IMO almost not worth the money.
If you are new to medical MJ, don’t worry about addiction. It’s far safer than opioids with fewer side effects. I’ve gone from using multiple times a day to stopping cold turkey and it’s never been a problem. Giving up coffee was far worse.
Also quality matters. Think of the range in quality you find in beer, wine, or liquor. Same applies here and if you are taking it as medicine you’ll be better served going for something top shelf. In non-legal states the quality of CBD products is all over the place so do your homework.