I have been on Lyrica now for around 3 months and on 300mg per day… i have also been going to counselling once/twice a month for the same amount of time. I have to say i am feeling much more positive nowadays and off the anti inflammatories for the first time in 15 mths. Relationship with my wife is far far better, i have been able to go on holiday and be reasonably active with the kids and i have even started jogging again (tip from @vasregret has helped and also additional padding support in my crotch). I had previously tried Amitriptyline and Cymbalta with no success. Its been 15 months since my vasectomy, 6 months since my redo and i feel that the pain is no longer the centre of attention in my life which is a fantastic feeling! I want to be drug free in the new year but not at the loss of this renewed life i have.
Glad to hear you are making some positive headway.
Progress is progress no matter how you look at it.
I have come to believe that in some cases a redo or vasectomy cleanup is the least invasive and best option to fix PVPS. You are not radically altering the spermatic cord and you are removing scar tissue that can be the source of pain. I think fascial interposition, sutures, clips, aggressive cautery can create a mess that will never heal. You are not radically altering the length of the spermatic cord or changing the lie of the testes. I’m glad it is working out for you. Keep us posted.
@ljtomono1 I think getting your life back is the most important thing for all of us. I’d definitely consider it a win, even if you have to take a med. I wouldn’t worry to much about the Lyrica, especially since you seem to be in a good place. Glad to hear it.
Hi All… just thought i would give an update… symptoms have always just been abdominal pain/discomfort. Had Vas redo both sides 9 months ago… same problems after redo. I have been on Lyrica and had counselling which helped me get my life back massively. After 5 months of being on 300mg of Lyrica per day i recently thought about starting to cut back… i cut down to 150mg it has been a week now and feeling pretty uncomfortable again in the abdomen. Had hoped that perhaps things would have improved again but obviously not, maybe i should give more time as some people say pain is worse than before when coming off these drugs. Considering trying Lipoic acid to replace Lyrica
Just ordered some Lipoic acid… hope taking this may compensate for lowering the Lyrica dose. 2 things i noticed when halving the Lyrica dose… got very grumpy and pain came back partially i.e. now getting the desire to undo my trousers when sitting down… did not miss that feeling!! At least the grumpiness has gone now.
Seem to be getting on a little better on the lower dose of 2x 75mg of Lyrica per day… head so much clearer. Seperately i am doing some physio exercises for sore lower back, seem to be core related, wondering if this is helping me somewhat?
Its been a while but quick update, back running and doing really well with minor increase in abdominal discomfort. Using scrotal support with plenty of padding only when running. Still on 150mg per day of Lyrica… curious on the effect of getting off it but not willing to rock the boat. Had an ulcer (probably from over use of anti-inflams) but now clearing up
What were your ulcer symptoms? Yes, NSAIDS are not good for you GI tract or kidneys and if anyone finds themselves needing them long term to manage PVPS they need to consider another course of action/treatment.
@MikeO i was doubled up with stomach cramps in bed for 2 days… took omzerapol for a couple of days and subsided. Finished the course on monday so hopefully healed… trying to avoid certain foods and stress (not easy when you are a programme manager at a major telco!)
Used NSAID tablets for about 3 mths but then used NSAID gels for a further 8 months. Stopped altogether 5 months before i got the ulcer
Hi All, i have been going to the Pelvic floor specialist for a month now (3 sessions)… He does not claim that he knows the answer but believes that freeing up my pelvis and abdomen and also techniques to release any tension could help. I reserve judgement at the moment but so far it ‘feels’ like it is helping. Despite a part of my brain saying this is a nerve related issue i am trying to buy into what he is doing, i think the breathing exercises he has given me are helping me manage flare ups and my abdomen/pelvis are feeling the benefit of the massage. I am still running and both my times and recovery are improved since i started the therapy. We are coming up with plans on what to do about Lyrica usage and use of the scrotal support whilst exercising. So despite the cost (£75/session) i am going to continue as i think it is well worth it.
Hi Lee, how are you? Still taking Lyrica?
Hi @Juno… no i stopped back in January after slowly weaning myself off it. Discomfort/pain has slowly returned but i don’t think it is quite as bad and the benefit is i got my fitness levels back and have managed to keep exercising. I am also doing pelvic physio and looking at starting acupuncture soon to see if there are any benefits. I am also on the waiting list for a nerve block, which i hope will come through at some point.
Hi all… Definitely seen my pain return now after weaning off back in January, clear to see a steady deterioration and now unable to exercise again. I am now looking to get a nerve block done on private health as sick of waiting for public health system for one. Will let you know how i get on. Interesting note Lyrica apparently blocks serotonin which means nerve signals are reduced, it appears that this serotonin production re-starting seems to have an impact around a month after stopping Lyrica and gradually increases the nerve signals over 6 months or so.
Hi All had my GF nerve block carried out yesterday 2 jabs in the scrotum and one each side in abdomen. Went fine very little drama. Pain in abdomen has increased a little but i am told that is normal for a short period of time. Lets see what happens over the coming days and weeks!
Just following up after my nerve block recently, saw my pain specialist last week as it had been 5 weeks since my GF nerve block in 4 places…we agreed the nerve block had not done the trick… as it numbed the right area we knew more but for some reason had not worked. Booked in for Lidocaine infusion on the 15th November, lets see if that knocks out the pain.
Hi how are you doing these days?