I had my appointment with Dr Shoskes at the Cleveland Clinic. All based on what @raising4girls had said about his experience. Sadly mine was not as good. Which super sucks. And here’s what happened.
So Was hoping to get a real answer as to what my problem is. I have seen numerous people and they all come out with a different answer. So I was hoping to get a solid answer like Raising did.
Anyways, I got there early to do all the pre-appointment screening and whatnot. The entry nurse was kind of a whatever. She had a bit of an attitude. Which could be a Monday thing or who knows. She wasn’t listening and I had to say numerous times about different drugs and other things. She finishes up and tells me to head up to the waiting area.
I wait for a bit and another nurse comes to get me. I head back and wait for the intake person. Dr Brandon. Who told me flat out he doesn’t have a sense of humor and doesn’t smile. So I was like, ok. No point in wasting good material on him. I went thru a bunch of other questions which were of course vague and pointless. And I told him so. If you want to know more you can’t use a simple 1-5 questionnaire. Anyways, he finishes up and then does a quick sack check and heads out to get Dr Shoskes.
After like 20 minutes Dr Shoskes comes in and we start talking. We discuss the study and a bunch of drug issues and other questions i’ve had. And we end up trying something. My PM guy Dr Grimm has wanted to do a nerve block but I have been leery of it working. Well…It didn’t. So Shoskes did a shot right into the Spermatic Cord with Lidocaine and Marcaine. Marconi being a longer lasting “caine”. So he said he would give me a Lidocaine shit to help the pain, then the cord shot. Well, i practically went off the table! He was like, “did that hurt?” I was like OMG yes! He said, well, we know the nerve block won’t work. And right when he did the cord shot, i felt like I got stabbed there. My left side which has been more painful lately is the one that got the shot. And holy shit it hurts now. Actually, I am in more pain now, than when I went into the hospital!
So that’s my setback.
I know that the nerve block won’t work. I know that the drugs don’t work directly into stuff even tho everyone says they will and I don’t know what I am talking about. And I know that my only choices are reversal, denervation and an Orchiectomy. Which by the way, he said has an 80% failure rate!!! He also said that denervation has a 50% success rate. And reversal the same-50%.
So my setback is I am in more pain now and I am stuck with a 50/50 choice for the denervation or reversal. And a 20% success rate of an Orchi.
I hate these choices. Not what I was hoping for.
He did say I can do the radio therapy @raising4girls is doing. But he’s only done 1 to completion and that person has slight improvement. I wanted to try the easiest option first, the shot to see. And I was in so much pain I didn’t want to stay. I had been there for over 2 hours. So he said I could do it. Just needed to schedule it. But since I will be out of town for two weeks straight I didn’t want to worry about missing treatments. But honestly, I am pretty crushed. I really do feel like I will never get better. And since I am stuck with a shit homelife, this whole thing just gets worse.
Anyways, not trying to stop anyone from trying options, we have too. Just sucks when they keep getting cut down within success.