Guys, I first want to say I’m praying for everyone is this forum and truly hope everyone here finds some relief from their pain… I’m going to share my story because reading everyone else’s story has helped me a great deal. I’ve read stories from the sidelines on this forum for months and now feel obligated to share my struggle in hopes it will help anyone out there that’s going through this terrible, unknown, misunderstood, debilitating, depressing diagnosis of PVPS.
I am 36 years old. I have two children. I lived a very active lifestyle. I worked out every morning at 5am at our local YMCA. My wife is a Nurse Practitioner. I play golf on the weekends (my usual partner is a Radiologist-I’ll get to this later). We have a pool that we swim in every day during the summer. I enjoyed yardwork and always had a project going on around the house. I’m in sales and own a small business. Your typically all American dad over here right?
December 2019 I had a vasectomy. Was very confident with my local urologist. He graduated from Duke medical school and he had performed the procedure for most of my friends (including my golf partner the Radiologist). I felt the procedure went well and most of everything I experienced was normal. Two weeks after vasectomy I ejaculated for the first time and everything “seemed” normal. Within 24 hours (*Christmas Eve) I was in so much pain I could barely sit in the church pew at service. I knew at that point something was very wrong.
Jan- March: These next three months were some of the worst months of my life. Multiple doctors, multiple types of tests, ultrasounds, MRI’s. Diagnosis of epididymitis. Tons of secretly searching for new doctors. Finally one doctor told me I was in the 1% that develop PVPS. (which we all on here probably believe that % is low, but I’m not going there). I do want to pause here for just a second and say during this time the game of mental attrition had almost taken its toll. Some days the pain was terrible and some days I hardly had pain at all. Nothing made sense and there seemed to be no linear explanation of my pain. I was regretting my decision. I blamed my wife for making me have this procedure. I wasn’t there for my kids he way I had been in the past. I was angry, depressed, and full of shame. So, if that’s you right now, I would like to tell you that those emotions are completely normal. Please don’t feel like you’re the only one.
March is when my doctor referred me to Dr. P which at that time was the PUR clinic in Orlando.
April- August: My pain had leveled out to about a 1 everyday. It didn’t hurt to ejaculate. I didn’t have trouble with erections but my sex drive was diminished. Most of my pain was from the epididymis, and most of that was from the left side. Just a dull aching pain all the time that would get worse 12-24 hours after ejaculation. During this time I played golf but was unable to lift weights or exercise. Typically enough beers would do the trick for the pain until the next day.
August- November: I had the same level of pain. On again off again. Literally going insane trying to figure this out. During this time I was in communication with Dr. P and he was in the process of opening his new clinic in Orlando Avant Concierge Urology, which I would highly recommend. He recommended a reversal and from what I had read on here with my symptoms, I agreed. If you’re thinking of reversal I would highly recommend him. Because the cost was much less at his new clinic ($3,800 compared to $7,600 at the hospice) I chose to wait util his private practice was open.
December 4th 2020: I had my reversal surgery (Vas to Vas). I am 8 days past surgery and I can say so far that I don’t regret it. Pain has been minimal and at this point I’m not sure if the pain I do have is from the reversal or PVPS. Swelling has been insane but that I was told by Dr P that is expected. I can say that immediately after my vasectomy it was painful to stop urinating and I can already notice the the reversal has resolved that pain. I feel positive and optimistic for the first time in a year. I will try to update every 30 days during this period of post reversal surgery.
Guys, I can’t say enough about how debilitating PVPS is for men. My radiologists friend looked at me one time and told me, “it was all in my head.” This was a physician whom I was good friends with. My wife who was a Nurse Practitioner didn’t believe the pain was “that bad” for months. I just wanted to say if you’re experiencing this please stay the course and try to find answers/solutions. I’m happy to answer any questions and be here for anyone. This process is a lonely place and I’m thankful for this forum.
Last note, I can only speak from my experience but Dr. P at Avant Concierge Urology was nothing but great. Through this process I found many doctors that didn’t want/care/unable to help me, but Dr. P is a great guy. He answered all my questions in a campassionate and caring manner.