Hello there, my condolences for what you are going through. many of us are following several threads in this area. i wanted to share a bit of my experience and the only solution that finally worked for me.
like many, i trusted my doctor to “know best” to not pay attention to all the possible consequences. At first, things seem to go well. no ED, no pain. after about a year, i started to notice some discomfort and got the realization of something wrong after getting progressive ED.
Being a triathlete, i shrugged off the ED to “training tiredness.” not giving it much thought cause i am healthy and under 40 "there is no way i’m in that 5% of cases!. after about 2 years, i started seeing that it wasn’t my training and wasn’t normal. i began to seek help from doctors and they shrugged it off as psychological, (all T levels and other lab results were in the high range) except that i had pain, so i had them focus on that as a reason to get a Vas reversal. it took two years to convince them, but got them to pay.
several months in after reversal, i was feeling some level of “normal,” pain i had was gone, but after 6 months, ED was coming back. i went back to research and learned that a varicocele can have effect on such things, so i plowed again with doctors and had varicocele surgery two years later. again within a few months, felt better, but after 6 months again, it came back! after waiting a bit to give it time to fully heal and confirm my issue wasn’t resolved. i tried alternate solutions, EMS/TENS, heat, sonic waves, and finally shockwave therapy.
i went on to buy my own shockwave machine and it seemed to start to work, went through the whole program - 2 sessions a week for 3 weeks, 3 weeks off, followed by another phase 2 session. again, there seemed to be some progression, but it was bleak and learned that the reason there was reaction was due to the added blood flow of damage to the area. this in turn was the case after having the surgeries. the body’s mechanism for healing kicked in with adding more blood to the area which gave the perception of being “healed”
after learning this, i submitted to the result that i was not getting rid of this ED and turned to generic cialis. the drug worked and felt new, however, in my mind i couldn’t resolve with the thought of taking drugs to get excited specially while young and healthy, nevermind the side effects i was getting from it. blurred vision, headaches and some minor things. i settled to contact doctor again who scheduled a sonogram to do a scan of blood vessels which confirmed a slight closing of the main vein. not much was given to resolve except, keep taking drugs. i was already broken, so not getting any better news didn’t mean much. i felt i had tried everything possible and still nothing… but at least there were drugs that were seemingly messing me up in other ways, but necessary. yet, somehow this didn’t feel as where i should be…
being a man of faith - Christ following faith at that, i went through all the protocols of questioning as much as i went through grief process. at this point, i can honestly say that i tried everything humanly possible to resolve my issue on my own strength, so i prayed… and just so happened that there was an “Encounter God” conference with someone who has been known as having the “healing” gift coming up, but guess what hit that time frame… COVID - the people who were supposed to be there couldn’t fly in and the conference changed directions. i went anyway in faith. the first day went ok, hopeful for an encounter, second day was bleak and started to loose some hope, after debating to show up the third day, i settled to go and glad i did.
i know this may be beyond the thought and scope of what others believe and can fathom, but there is something to be said about about a “being raised from the dead after 3 days” the guest speaker spoke over the people and felt a prophetic unction to say that many had been struggling with issues over these last several years and began to pray over many of us who raised their hands. nothing really happened after, didn’t feel anything “miraculous” or “magical” but i felt some level of hope.
that week, i tried to move in faith and stop/ limit taking drugs, and in honesty, it was difficult - specially noticing that there wasn’t much “rising” in me… except that there was change occurring. i noticed morning risings were coming back stronger and settled to stop all drugs and supplements.
it’s been 2 months since and i can honestly say that i am fully healed. there is something to be said about this season of pandemic both in my own little world and the rest of the world… only God is in control.
in this, i went through a period of asking forgiveness for what i had done for not wanting kids and wanting “control” over all these things… i asked God to forgive me also for this control and to help me undo what i had done. (there is a bigger back story, but not enough time here) and he had mercy and as always shown mercy and compassion and his willingness to see my brokenness and truly heal me.
maybe this is nonsense talk for you, but for me it’s real… i tried it all and had no results… in true humility and brokenness, i went to God - through Christ Jesus, and he saved me from myself!
and maybe, just maybe doing so Christ Jesus will save you as well!