Hi, just reaching out for anyone else in Australia? I’m so frustrated I would fly anywhere in the country for help… thanks
@jimbo, Russell72 and Macca are both from Aus that i know of there may be others. I have spoken to both guys. Russell72 had a reversal in Aus but said he is not fixed fully.
So do we have any others from Australia? Or are we the only four special ones suffering?
I have a mate here locally having issues. Different to mine, from what he explains I think it’s granuloma. Small painful lumps appearing. Hes a bit too macho & not really financial enough to seek help & is in Bali with a shopping list of drugs to self medicate. That’s another issue, forking out around $200 a time to see each specialist. I’m st least $4k into this now.
Its hard for us that dont live in a capital city all the GP’s and urologist are a waste of money in Cairns QLD. So my closest is Brisbane 2000km away. So yes the money adds up very quickly. The thing is medicine just hides the issue thats not fixing anything. And a reversal is $6000 to $10000 depending circumstances.
Im in Adelaide.
4 years now with PVPS.
Had it changed from closed to open.
Had a reversal 1 year ago.
Mild improvement post reversal but still quite bad.
Is there anyone in the world that specialises in this?
sorry that you’re in this situation. I’m around 4 years in too.
Among others, I’ve personally dealt with Dr Trenton Barrett in Perth, a Urologist. He did denervation surgery on the left side with me, partial relief.
More recently I’ve seen Dr Mondello, a pain specialist in Perth and had pulsed radio frequency nerve ablation. That’s given me some relief on the left side.
There’s Dr Garvey in Sydney, he’s a proponent of open ended and reversal as treatment, but you’ve already gone down that road.
There’s Dr Woollcott on the east coast, he’s a proponent for reversing, but you’ve already tried that.
You can email me direct it it’s more convenient.
Hey Jim, did your pulsed radio frequency nerve ablation look anything like this procedure?
It’s available at a clinic near me in Oklahoma. Did they burn the nerve near the spinal column? How much pain relief did you get on a scale of 0% to 100%? How long has it been since the procedure?
I’m not sure it’s the same.
My doctor explained that the nerves weren’t damaged under his procedure, more disrupted or reset… he told me I could get anywhere from no relief to a good result, for anywhere up to 9 months or anywhere within that scope.
Mine was not in the spine area. He did the hip to target the inguinal nerve and near the base of the penis to target the genito femoral nerve. He did this on both sides. He did it under xray guidance, and I was under anaesthetic.
On the left I believe I have got about a 30% reduction in pain, and 30% reduction in the frequency of it flaring up & a 30% reduction in duration of the flare ups. It’s still always present, but it like the volume has been turned down, I hope that makes sense. On the left I believe I have either a neuroma or nerve damage, due to the nature of the pain and the way it radiates into my hip and leg.
On the right I got no relief. On this side I believe the pain is congestion related.
This was just over 2 weeks ago & my follow up is next week. It’s by far the best result I’ve had from nerve block type treatments.
Happy to answer any questions.
Sorry for typo’s, I’m on my phone, not a desktop.
Jim, did you have any nerve blocks of local anesthetic first as a test? For example, with denervation they first do a cord block.
I once had a shot of something via my hip under x-ray guidance to target IH, II, and GF nerves; but I wasn’t under anasthetic. I got no relief from it. Your procedure sounds almost like this one.
Hi, yes I had various nerve blocks, my pain has always varied and fluctuated radically on the left, so nerve blocks never gave a clear result. I’ve never had any relief on the right from nerve block, that pain is consistent and always present.
The next treatment for me is a week long ketamine infusion as suggested by my pain specialist.
Hi All, first time posting from Victoria, Australia. Open ended vasectomy 10 weeks ago and been in a world of pain since. Symptoms started with extreme scrotal pain which could only be dulled down with endone. This eased around week 5 but still sees me in considerable discomfort i.e. can’t walk more than a slow 20-30min. Urinary issues since day dot, burning cord, pelvic pain, lower and upper abdominal pain. Been reading from a far until now but thought it time to register my case and touch base with other guys here especially fellow Aussies. My Mrs just took my 3 year old for a bike ride and he was crying because Im not going and am instead stuck on the couch in pain. Mood is very low - Wow how life has changed in 10 weeks!
Very close mate new Zealand sorry you are here
Sorry your here mate.
I’m in WA, was it dr Lekich you went to?
Hi John, sorry you have joined our community not in Australia (South Africa), but just wanted to commiserate. One and a half years post reversal I have seen ups and downs, but on the whole it seems most people suffer less with time. I am able to go for long walks and runs now which were unimaginable the first months after surgery.
@jimbo - No mate, a local urologist performed the procedure. I have stumbled across Lekich’s website during my google search’s though. Anything I should know?
I’m week 10-11 now and it has been rough, very rough. But hey, I was consulted about the risks going in and I’m in allied health so I should have known better.
Was I reassured that this was highly unlikely? Yes.
Did I receive a thorough enough pre-screen? No, I don’t believe so especially with previous inguinal hernia repair and ultrasound at 6 weeks post discovered bilateral varicocele’s. Were they there prior? Never noticed anything, never had any issues but as we know they may very well have been there.
Should I have researched more? Most definitely.
Would it have stopped me from walking into the uro’s office that day? I’m not sure, maybe not.
I admit I was quite resentful and angry (and scared) for the first few weeks as I traced back conversations in my head between the Mrs and myself and various Dr’s post the birth of child number 2. It’s interesting looking back on it now and reflecting on how one comes to make decisions, I felt I was definitely funneled into it. However, that’s an unproductive mental space to be in. I’m a believer that all of our decisions are based on self-interest. For me, probably like many here, I get great satisfaction out of looking after my family’s health and who can go past worry free sex for the rest of your life, right…? Well, FMD that kind of backfired so here I am! Anyway, I’m determined to find a way through this and maybe I will help others in my quest.
Nothing is really settling down symptoms wise. I’ve done 6 weeks of celebrex and amitriptyline and am just finishing up a course of prednisolone. The pred seems to have helped turn things down a little but not significantly. My uro is a decent human who is affording me the care and compassion one would expect from a good Dr so I’m thankful to have him on this journey unlike some that tend to bail once sh!t goes south.
I called up my mate a couple of weeks ago who is a chiro and I told him I needed him.
In session 1, we went to work starting with the abs. My abdominal aortic pulse was so lit up that I half thought I had an aortic aneurysm. I can’t say I fit the bill though - 38y/o, bike, run, swim weekly, strength and movement a couple of days too, don’t smoke, hardly drink. Nope no AA, just a simple vasectomy. Anyways he dampened down the abdo spasms and some dirty big psoas trigger points with some tissue work and dry needling over a 2 hour session. A bit of relief but the abs were tender for the next 2-3 days.
Session 2 a week later and we set to work again settling down some more abdominal wall spasms. He then worked down the cord. First the right side with the prior inguinal hernia repair was a bit tethered down with some scar tissue which he worked on. Then he descended into the scrotum and passed over the varicocele. It was quite painful and sent me into abdominal spasms. So he had to dampen down the abs again with tissue work and needles. Down the left side side next, hit the varicocele (neither of which are visible or even obvious on palpation) on the left side this time which was more tender than the right but we pushed on and then he bumped into the head of my epididymis…and…all hell broke loose. I didn’t know whether to defecate, vomit or pass out. My abs went into uncontrolled reflexive spasms with severe flank, ab and lower back pain. We rounded out the 3 hour session by trying the dampen down the spasms again.
I write now, 3 days later feeling pretty beat up. The last 2 days I have experienced been some pretty serious nausea and I have needed endone to get to sleep but I feel we may have made some progress by identifying the source(s) of pain albeit at the risk of sensitising things further. I’m commencing lyrica today to try to dampen some of that sympathetic response. Whether it is congestion pain at its core IDK but the sympathetic response from the nervous system was one hell of an experience. I know about referral pain with my line of work but there is a difference between theoretical knowledge and understanding. I have experienced and I now understand.
Anyway I will keep pushing forward. Thanks for reading!
Wow man quite the journey and its early days for you. I am very sorry that you are having these issues mate. I think that vasectomy is sold that all men should have it done. When my procedure was done there was nothing that I could find that would even suggest that there was such a thing as PVPS and if there was my wife would not have changed her mind. What’s done is done and I hope you find away to help you. Can I just say if they start offering more surgery do you homework mate I had an epididectomy it was a total waste of time. Never relieved pain and thank God I only done one side the urologist damaged the blood supply and my testicle has shrunk away. I will end up with just one as they have said it will have to come out. Good luck mate I hope it goes well for you
Yes, it seems many who post here were not consulted about the risks and were actively encouraged into it. I feel that the risks of complications were minimised in my pre vas consult and I came away thinking that I could get a mild ache occasionally if I’m unlucky. But that conversation seems to be based on my urologists knowledge and experience to date performing vasectomies. If he had 10-30% of guys coming back with issues I can honestly believe that he would stop performing them. He has told me that he has only ever had 2-3 guys come back 2-3 weeks later but they all settled down with a few weeks of NSAIDs. It also appears that there might be many suffering in silence which doesn’t help anyone.
I don’t really know what the future holds. I’m still scared as I can hardly function and often have to hold back tears when around the kids and Mrs. All I know is that I can not accept this way of life so I must keep pushing forward somehow to resolve this.
Do we have any accounts of people’s referred pelvic and abdo pain resolving with reversals or other surgical intervention?
Look through some of the heading mate you will find some pelvic areas
I mate wish that I never had a vasectomy it is a very big deal to give up your fertility and I believe women need to realize this. I think vasectomy is designed to make men feel it’s their obligation and sadly men buy into it. Not until things go wrong with being sterilised that we look into it and search online to work out what in the hell have we done. There needs to be more education on vasectomy the pros and cons and not sold as a 15 minute snip that has no problems. I hated myself for giving up my choices and felt that my testicle were separated from my body. The pain makes you think weird things and is a fact that it changes your life and in some cases not for the best. I had pain constant for 25 years and got completely fob off that it was all in my head. This is why I am saying to you mate don’t rush some surgery without looking into it.