Hi all, I had traditional denervation on the left side at Stanford back in Nov 2013. I posted many times on the old Yahoo board if some of you remember me. I had this after suffering awful pain at the incision site on my spermatic cord for 8 months post-vasectomy.
34/M, married, two toddler boys, employed
As hard mentally as it is for me to start talking about this again, I wanted to give you an update for those who were curious.
The first few months after denervation were very difficult. While my old cord pain is 100% gone, I’m left with a new set of pains and frustrations.
After swelling and everything “settled down” post surgery, my left testicle remained larger than it had been previously. It was partially from fluid, although now the size and slight heaviness is clearly due to my epididymus being enlarged. Just at the head of the cord where it meets the testicle is where I have pain/sensitivity when it comes. I did not have any actual testicle pain to speak of prior to denervation.
If a slight sensitivity to touch was all I felt, I’d probably be ok with that.
My other issues started a few months ago. It feels like back pain and lower left flank pain. When my testicle causes pain, it’s always at the same time that a very specific spot in my back hurts.
I’ve had off and on minor back pain from time to time over the years, but the duration and severity of this episode make me wonder.
Also, shortly after my initial vasectomy, I began seeing a gastroenterologist for lower-left pain and some other gastro symptoms.
Due to one or more factors, I basically have pain and discomfort in a giant swath beginning (occasionally)at the end of my left testicle, disappearing then resuming at the denervation incision site, disappearing again for another 5-6 inches, pain in my left lower quadrant, through to my back, then up to my spine in my mid-back. My actual incision site, despite having persistent painful numb sensations on the skin from the incision site south has become more and more sore. Sometimes I can touch my testicle to induce pain and I will feel it in my back.
I really feel like my body has experienced some sort of awful domino effect. I honestly don’t know what doctor to talk to or what issue is the main one causing me ongoing pain.
This is difficult for me. Despite having a few minor health issues from time to time, I have been overwhelmingly healthy. This has been a drastic change in my life for the worse. I’m not usually “that guy” complaining about this and that all the time. Now, each day I have something causing me chronic pain in this area.
Here’s a quick summary of facts:
Pain at vasectomy site in cord 100% gone
Occasionally have good days/weeks where I feel almost normal
Swollen testicle/epididymus (also hanging lower from weight & surgery)
Sensitive testicle near epididymal head where I had no issue before (pain can radiate to back)
Sore denervation incision site
Lower left and left flank pain (I have diverticulosis, but never a confirmed tested case of diverticulitis)
Pain through abdomen to back and into middle-back spine
Back hurts almost constantly the last few weeks/month
I’ve had several back-to-back bouts of prostatitis and urinary frequency over the last month+
My urologist and Chiropractor both had me get a lumbar MRI. That showed what would be considered “normal” degenerative things. They are scheduling me for a thoracic MRI in the next few weeks to make sure we image the area of my complaint. (On another good-luck side note: I’m apparently one of the few people who get Peripheral Nerve Stimulation during an MRI. Basically my chest and arm muscles all twitch to the beat of the MRI sounds. Yay! )
I’m going back to discuss all of this with my Urologist on Thursday.
I honestly don’t know what to think or which doctor to talk to. Here’s the thoughts running through me:
Did I form a Neuroma after the denervation? How do I know what that feels like?
Do I have intestinal issues or is it coincidental nerve issues from the vasectomy/denervation? Or both?
Do I have a back problem irritating this nerve all through me, or are the issues in my pelvis making my back hurt?
I’m so frustrated. Some days I put all of this out of my mind and ignore the pain. I find walking and staying busy help as a distraction. I’ve even lost 17lbs now. Other days I get so depressed I can hardly stand it. I start to panic in trying to accept that I may just never be the same again. I get very sad on bad pain days when my poor little boys want Daddy to play with them and I have to say no. I get so short and irritable with my family over little everyday things when I’m in the middle of hurting.
I feel like my body is spiraling out of control and I’m at a loss as to how to stop/reverse the descent into a sentence of lifelong chronic pain. I’m sick of being a whining complainer, sick of hurting and I’m disgusted that I’m not able to fully be the person I want to be as a father in my mid 30’s with two young boys.
I would like to message Drs Parekattil and Brahmbhatt but the last email interaction I’ve had with them was at their orlandohealth email addresses. I have no idea how to ask them a quick question any longer. @urologicmd @S_Parekattil_MD maybe?
I’m glad we have a new group here, even though just talking about this brings tears to my eyes.