Well, just got done talking to Dr. Marks for a solid hour. Great guy, super energetic. Seems like he loves what he does and is super knowledgeable about this condition. He was very up front that he is biased towards reversal and mentioned Dr. P’s approach and that it’s different from his, but also has good success rates.
Probably the most striking thing was “how” he talked about PVPS relative to my urologist. He talked about it like it was rare but none of the “what? I’ve NEVER had anyone with a problem? It must be your prostate!” crap that most urologists give you. He said 10% of his practice is pain patients. It was just disorienting as most of the people you talk to it feels like a lot of what you’re saying is convincing them you’re not crazy.
He quoted me a 90-95% rate of complete pain resolution with their reversals, for what that’s worth.
He rapid-fire took me through the entire list of conservative measures from warm baths and ice to herbal stuff (curcumin, fish oil, vitamin D) to NSAIDS to testosterone and steroid packs. I told him I had tried everything on the list except test and steroids.
He then took me through all the other surgical options (besides reversals), and gave me his thoughts on each one. Made some good points.
I described my pain and my history pretty thoroughly, and ultimately he didn’t think I was an “immediate intervention” type. He told me that if he was a betting man, he doesn’t think I’ll need surgery and that it will go away in time. Thought that was pretty interesting. I asked him to explain how he came to that conclusion and he said basically a combination of my pain reduction over time, my generally low level of pain, and just an intuition from dealing with a lot of patients over the years and their mental states. His advice was to try more conservative stuff for a few months, and see what happens.
So I’m honestly not sure what I’m doing now. It obviously feels “good” to hear that from a professional with a lot of PVPS experience.
Changed my thread title because now I’m not sure I’m doing anything. Sigh