While it would be ideal to create a PVPS foundation (Pudendal hope is a registered charity/foundation and so is post-finasteride syndrome foundation) it's going to require some organization and we'd have to apply for non-profit, charitable status.
It's certainly not impossible, and I'd be happy to start it with some members here, but I think it would be ideal for this foundation to be in the U.S. (bigger population, more PVPS victims, more awareness etc) vs being started in Canada.
Ideally, in my opinion, the best way to get started without all of the legal wrangling, charitable paperwork, non-profit status hoopla would be for a bunch of us to form an advocacy/awareness group. I see there are a lot of guys here with IT and web hosting backgrounds. That puts at a big advantage.
An advocacy group should have a mission statement, and our website must have a FAQ section about PVPS, make reference to ALL PVPS statistics from the AUA, CUA, NHS and include various research papers, and of course a little tidbit about "Why does my local vasectomist say 1 in 1000 or why haven't I heard about this?"
Again, as an advocacy group, we don't have to worry about tax issues, etc, and we can have a North American chapter and perhaps a UK chapter (a lot of UK PVPS guys here).
PVPS victims could contact the website with their informed consent documentation and we can notify the urologist/hospital/GP/guy with kitchen scissors about their bad outcome and include an information sheet about the true prevalence of PVPS. Although there are HIPAA requirements, we can always get around this by only using patient initials or only including date of surgery, something to that effect.
Another thing that an advocacy group can do is file a brief as an Amicus curiae https://en.wikipedia.org/wiki/Amicus_curiae basically an intervener in lawsuit to educate the Court with information in a potential PVPS lawsuit or medical board hearing. This is commonly done by advocacy groups in other matters and can really make an impact. We can do this too. It doesn't mean we need a lawyer to do this.
I like this site and really appreciate what @Victor has done for us, but we need an organized webpage all about PVPS, with research papers, treatment, and a FAQ section. Prostatitis.org has an info section and homepage, so does pudendalhope, so does post finasteride foundation. We need this too.
I'd be happy to chip in with some other guys here and buy a domain name to start this. I don't know much about web hosting and HTML, but it sounds like there are a lot of guys in here that do.
PM me if you're interested - we need to bring more legitimacy and awareness to PVPS sufferers.