Perhaps if we all contacted various news outlets (i.e. CNN NY Times, BBC, CBC, MSNBC etc.) and agreed to be interviewed and provided data that the AUA themselves provide (i.e. 1-2% with severe pain) then maybe we could start getting somewhere.
I remember seeing an article about a guy with PVPS in the UK, I think it was in the daily mail or something, but the guy described his pain as an ache in his testicle that came and went. We have a lot of members here who have been seriously fucked up by a vas, way more than just an ache in the testes.
If we can get major news outlets to at least do a story or two (perhaps we can get some help from Kevin Hauber) and stir the pot, at least when people google post-vasectomy pain syndrome, a lot more will come up than just the wikipedia article.
Before I got my vas I googled pvps and all I saw was the wikipedia article and this site, which only had say 200 or so registered users. I figured that if 500,000 men per year got vasectomies and 10% were in pain and 1-2% having severe pain, then there would be WAAAAY more users on this site. But, I was wrong. Men don't wanna talk about this shit, or are embarassed to. I mean, it's perfectly fine to say to random folks 'I have lung cancer' or 'I have leukemia' but to say I have chronic genital pain from a vasectomy to random people? It's inappropriate, or TMI right?
Anyways, if my vasectomist, Dr. Ronald Weiss (yeah the no-scalpel guy in Ottawa who's done 40,000) had told me that it was about a 1 in 50 chance of having pain, I would have walked out the door. Instead, he told me it was 1 in 10,000 chance of a 'kind of chronic ache in the testicle, for which a reversal is required.' Of course, I figured, well, you know, doctors can't really lie about risks from medical procedures, what with liability issues and all right?
Boy was I wrong. Hell, even if you read this guy's RateMD's profile, there are like 10 or 15 guys who have complained of pain. If he's done 40,000 vasectomies, there should only be 4 PVPS guys... right?
Another thing I just thought of...it's a long shot though, and I don't think very highly of the guy anyways, Dr Oz has a submit a topic for a show on his page. Just an idea.
Anyways, I'm willing to be interviewed and have my name in an article. Yeah it sucks and it's embarassing but c'mon guys it's time to change this shit. I don't have an issue with vasectomies continuing, I mean let's face it, most guys are totally fine, but I want every guy to be informed that there is a real chance of developing chronic pain that can't really be fixed, and it could be 1, 2, 5, maybe even 10% chance, and it might not happen immediately, and it could be 20 years from now. That's informed consent. I think that 500,000 number would dwindle to about 5,000 personally.