I had a cord block which was marketed as possibly long term pain relief and if one chemical mix for the block didn't work, that there were other chemical which could be tried. There was no mention of it being a diagnostic test and I had close to 1.5 months of pain relief. The last 2 weeks of it were hit/miss as if it was wearing off.
After being scheduled for a 2nd nerve block 4 months later, the dr stated the original mix of chemicals was the only one he uses and offered an orchiectomy. When I explained how the nerve block (performed not under anesthesia or even a local) increased my pain 10-fold, I was told that it just wasn't possible and it's like finding a needle in a haystack.
Move forward 3 months later to a specialist who does microscopic testicular denervations and does not believe in orchiectomies. This doctor told me along with the assisting dr in the room that hitting any nerves during this procedure is also like finding a needle in a haystack. I understand the CYA society we live in, but downplaying reported increased pain while trying to create the image of a menacing apocalyptic painful future by trying a denervation seems like an unbalanced approach. Originally I was told I would be a good candidate for the denervation, I contacted the dr who originally performed the surgery and he said they normally last from a few hours to a few months and I feel I had good results. The fact is, I traded slightly over a month of being pain free for having increased pain the rest of my life.
Some social engineering was used with the 2nd specialist - I wanted to see all options available and be able to choose on my own what I wanted to try next. I opted for the denervation being that originally I was told I was a good candidate but before the next visit I rec'd notice that I was not a good candidate due to having pain after the nerve block wore off. This doctor warned me that I could end up in worse pain and would want to try and exhaust all conservative options before surgery but the warnings were null - I was already in the worst pain possible.
After trying gabapentin and having a bad reaction to it, this specialist is no longer returning any calls to continue the next step in treatment.
I have skimmed over the site for a few years and decided to join. I know there will be people here who understand the chronic pain, the hassles and games that the urologists play with near immunity, but I'm at a point where being lied to, and being left in a worse condition seems like medical malpractice.
I did read on another thread that there was consideration of creating a private area of the board for that kind of info.