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Should I fight for an Orchiectomy right out of the gates?


#21

You too @Choohooo. Since I’m in healthcare and work in surgery, I’m blessed to have a solid knowledge base and I’m surrounded by incredibly smart people. That is both a blessing and a curse. Its a blessing because I have the ability to pass ideas around with people well versed in pain issues. It’s a curse because I find nobody has ever really heard of PVPS or much less what to do about it which only adds to the fear and anxiety. This forum is a blessing for people suffering with this condition to pass ideas and opinions back and forth.

For anyone reading this that is not a registered member or are hesitant to put their story out there please post your story so that even more information can be available to all of us dealing with this.


#22

If pain is your only complaint, I would just hold off for now. Continue with the papaya seed treatment, and give it 6-12 months. I’m not sure what option I would be looking into if staying conservative doesn’t work, but given your unique set of circumstances, I feel it’s your best bet for now.

I’m no different than many far as it sucks giving it much time. I had to learn the hard way that time may be my best option at some point as well. I feel we all have to find our own paths.

I don’t regret having gone through with reversal. I don’t think that just time could’ve fixed all that I had going on. But at the end of the day, time (years) has been good to me post reversal/s.

I could’ve jumped into de-nervation, etc, etc. I chose time instead. I didn’t know about papaya seed therapy years ago. I’m very thankful to the guy that originally posted about it here on this forum.

I don’t drink alcohol, but if I was anywhere near you, I’d gladly get together with you and chat.

Best of luck man


#23

@Kyvas I totally get what you’re talking about. I’m in healthcare and treat infection, pain, and granulomas 45 hours a week. It gives me a unique perspective but also access to the “real side” of doctors when you can see through their BS and call them on it. The most eye opening thing for me was a conversation with a vascular surgeon who is a friend my my wife. Vascular surgeons treat the pelvis, especially the inguinal area, like a nuclear reactor. They fear the region as much as they respect it. She personally refuses to even cut in the area and said most vascular surgeons are taught this is residency. You look at what urologists are doing and it’s no wonder there are so many problems. Aside from the head and neck, this is probably the most sensitive areas of the body with respect to nerves and vasculature. Uro’s simply don’t respect it. They caught and cauterize without second thought and simply lack the delicate touch it takes to work in this area.


#24

I chose a great vascular surgeon to do my varicocele embolization (intervention radiologist). I did my homework, had him talk w my current pvps expert (back then). When i told him what it was doing to me, he dropped me.

I’m not sure what it will take for some of these people to learn, but dropping your clients isn’t it.

Most if the work he does is on females. Post child birth pain problems.


#25

You all got my mind fired up. @Choohooo I’m glad I’ve got the “real side” perspective too. @RingoStar I’m sorry that you were treated that way. I’ve heard of this happening and there is no excuse.

This gets a little off topic but I have been thinking about many things. One is that it is unbelievable that we don’t have better medications for pain management. We still don’t fully understand the nervous system so it’s difficult to create non centrally acting agents. The options outside of opiods are limited in their effectiveness and often come with unwanted side effects. Opioids are great medications especially when used appropriately. I give them to patients everyday and they work extremely well, but they were never meant to be a long term option. However, the medical community has been giving them out pretty liberally for years creating dependence that only masks the pain but doesn’t fix it in many cases. This gets a little conspiracy here, but i believe It also gave the pharma companies very little reason to produce non-addicting non-centrally acting medications. There was just a story on the news about a company that created sublingual fentanyl spray which should only be given in very specific cases, ie terminal cancer, End stage AIDS, etc. However, this company was caught manipulating the system and getting this perscribed for people that should never have been given it. I use fentanyl everyday, its a blessing that we have access to it because of its effectiveness, but it’s highly addictive and should only be used in very specific settings. But this company basically created addicts to create profits. Thats so f%#*&d up.

Recently there has been a big push back away from opioid use in the medical community even its use during surgery. Obviously that negatively effects those who truly need it and is making some people look elsewhere when they can’t get there prescription anymore. However, the positive here is that there is a huge opportunity for scientists to create better options and the research is promising. It won’t be next year but I believe it will be within the next decade.


#26

We’ve officially highjacked this thread. I’ll do the honors and officially blame @RingoStar.

@Kyvas I don’t think it’s unbelievable about pain meds. Medicine isn’t advanced as they would have us believe. I think we’ve put more trust and faith in modern medicine than we should. Doctors don’t know anything. I spent 5 days at “The Mayo Clinic” (quotes to emphasize prestige) and all I got was an Rx for Naproxen and Gaba. So stupid I could see it on a bumpersticker some day.

I’m simply not convinced that vasectomy is the harmless procedure they claim it is. If you sift through enough research, you’ll recognize some pretty obvious patterns of deceit. The big one to me is arteriosclerosis. They vasectomize monkeys then dissect them after 12 months and showed obvious arteriosclerosis. The human follow up study looked at myocardial infarction literature and compared that with the incidence of vasectomy. That is NOT the scientific method. I get what they were doing but it’s not the same and I don’t believe that vasectomy doesn’t cause vascular issues. Look at PPA. Sandra Weintraub is the world’s expert on FTD. She’s not a physician in Kansas making this stuff up. She found an obvious correlation and the AAU’s follow up paper dissected her findings and painted her a fool. I have two patients w/ semantic variant and both of them had vasectomies. I personally have had cognitive issues and meet regularly w/ neuropsych. To say that vasectomy is benign is naive and arrogant.

Pain meds works but you are right, they aren’t a long term solution. In fact, recent research shows that long term opioid usage actually increases pain. Pharma cares about you as much as your vasectomist. It’s a money game. Look at cialis and viagra. Those weren’t designed for ED. Erections were a mere side effect but the elective nature of the pill made it lucrative and the rest is history.

The brain is a mystical place. Lots of unknowns. Hence, the predicament we are all in.


#27

Ha-ha. I will take the blame, not a problem. Seems to me @raising4girls already took the blame for that earlier.

Seems @Kyvas said talking with some guys that could relate would be beneficial.

It’s all good far as I’m concerned :smile_cat:


#28

Since I started the thread and helped hijack it, I’ll take the blame. @RingoStar is right. It has been nice to have a conversation with you all.

I’ve decided not to pursue the orchiectomy, or any surgery, for now but it’s on the table if pain persists. The meds I’m on are making the pain manageable.
I’m back at work and doing well there. I will take your alls advice and wait and hope things resolve without further intervention. I’m going to continue with PT and I’ve found an amazing massage therapist to help keep the muscles relaxed and loose. Its nice to be able to justify a weekly massage to my wife…ha… I’ve been trying to do that for years.


#29

The head of Uro at the Cleveland Clinic said an Orchi is a huge no go zone. He said the numbers are stupid low for success to cure PVPS. He said they don’t even like talking about it. That and denervation. Denervation is higher for success but not that much better.


#30

step 1 determine if your pain is nerve vs congestion. Have genitofemoral nerve blocked at inguinal ring if pain stops it’s all nerve related and your options are denervation, Botox, cryoablation, radiofrequency ablation, removal of testicle and removal of nerve or even blocks repetitively to try and shut pain off could be done at spine or ring or cord. After going through this for 4 yrs and being diagnosed with centralization and whole body RSD from spreading (not sure if surgeries spread it or just spread on its own). I personally would do block if it stops pain have just genitofemoral nerve removed at inguinal ring and placed in muscle to avoid neuroma by dr. Dellon or experienced hernia surgeon. I’d avoid any procedure that involves going back into scrotum unless nothing else works to avoid further damage. Basically if nerve is damaged the only way to stop centralization from occurring is to stop the nerve signal from getting to the brain!