First of all, I apologize if I’m treading on what is generally a guys only zone. My husband is in enough pain that he’s just sort of over this part of the condition - the researching, talking, etc. I hope you all don’t mind if I ask a few questions?
We have 7 kids. After #6 we decided to be done, and since “everyone” does the vasectomy thing, we opted for that over me doing something permanent because, you know, it was less risky. Ha."
Spring 2014 - original vasectomy. Hubby felt waaay more than he should, and just never healed. By fall of that year, he was still in high amounts of pain that was exacerbated by standing, walking, sitting, driving, straining, sex and not having sex.
Fall 2014 - saw a new urologist (his had retired). Tried a round of antibiotics, suggested a cortisone shot, but basically the urologist told husband he had PVPS, and there wasn’t much he could do. We were then referred to the top teaching hospital in our state.
Spring 2015 - saw specialist. Specialist felt that husband’s pain was NOT related to chronic infection, said that a reversal was our best option gave the success rate at 72% reduction in pain, especially since it’d only been just under a year since the original vasectomy
May 2015 - had the reversal. Doc said there was so much scar tissue that he’d have guessed husband was at least 15 years out from his vasectomy. No clue why, just made that observation - he was rather puzzled by it.
Summer 2015 - no reduction in pain, but we got a baby! Shock of a lifetime but that little guys is our bright spot and joy, however unexpected.
Fall 2015 - no change. Husband’s pain continued to stay at a steady 5-7, same pain triggers. He began working less (has a desk job as a CPA/business advisor), started gabapentin along with Norco, also started Flomax.
Spring 2016 - still no change. Husband was able to get in with the pain doctor at the same teaching hospital, but all he did was prescribe more pills - antidepressants that were thought to help with nerve pain. They didn’t, just made husband incredibly sick and nauseous.
Fall 2016 to Now- Pursued nerve scrambler therapy. Had pretty good results as long as he was receiving treatments every day. Had to take a break due to a month of bad weather. Pain came roaring back. Decided to not pursue further, as it was very expensive, the commute was 2 hours round trip, and the time in the car nearly canceled out the treatment’s good effects.
Meds he’s tried: gabapentin (sp?), Cymbalta, Norco, Flomax, cannabis (oil/tincture, edibles). None of those meds worked, however he’s still on Flomax. The nerve treatment made it possible to get off the Norco, but he’s probably going to have to get back on it.
What we’re looking for…
ANY news ideas. Specialists? Medications? Therapy regimens? We’re now 3 years out from the initial vasectomy, 1 year 10 months from the reversal, and he’s miserable. We are thinking seriously about pursuing a second opinion. His specialist at the teaching hospital seemed to think husband was NOT a good candidate for denervation.
Any thing would be appreciate, and thanks again for your time!