I am trying to find urologists, doctors, other health care providers (such as physical therapists etc.) in Europe that
a) acknowledge the existence of PVPS
b) have experience in treating PVPS patients, medically and surgically
So far, I’ve had little success with urologists and doctors; there seems to be one or the other surgeon in the UK and in Germany who know what PVPS is, but they are offering reversals exclusively, i.e. no other (surgical) therapies.
I guess many actively searching the forum are at a stage similar to me where all they want is to find a doctor who is understanding, who would listen to the concerns, and who can offer help and guidance through the various options that are out there.
Please chip in your experience; it will be of help for many of us here.