Advice I’ve given a few members 1) Find a doc that will listen to you and acknowledge there is a problem. Don’t deal with anyone that won’t take your concerns seriously. 2) After you find a uro/GP that is willing to help, explore medications to determine if you need them. I was started on Mobic( NSAID), Gabapentin and Elavil (different medications that help with nerve pain). They are not without side effects, but have helped me. I can’t take narcotics because I can’t work while on them. 3) Go see a psychiatrist/counselor to help deal with the mental aspect of this. I am in a much better place mentally. I realize this is going to be a long battle, but I have support at home and work, and I am coping pretty well with the fact that life may change forever. 4) Try massage/accupuncture and see if they help. Massage has helped a ton by relaxing my muscles. 5) One of the biggest helps has been Pelvic Floor PT. It’s unpleasant, but I can sit without increased pain and have learned ways to relax my pelvic floor which has relieved most of my referred pains. 6) I have been seeing a fascial stretch therapist (FST) which has helped immensely.I really believe he helped to mobilize some of the tissue, decreasing pressure on the nerves and removing any pelvic adhesions that may have developed. 7) I went full Paleo and then adopted the Ketogenic diet. Since starting it, I’ve felt like it’s helping with pain, but has for sure helped with energy levels and general demeanor which is great. I take turmeric, magnesium citrate, fish oil, vitamin d, vitamin c too. Papaya seed didn’t do much for me 8) Read these books. Viktor Frankel, “Mans Search for Meaning”. David Hanscoms “Take Back Control”. They helped me try to find some meaning in all of this and the latter helped me to realize the anger. Keeping my emotions/stress under control are important. I know that if work is hard, I have to take it easy that night. I say no to things I don’t want to do or that will cause me increased stress. If I get stressed, my rectum and balls hurt more.
My 8 month vasectomy anniversary was today and I am definitely, albeit slowly, getting better. 8 weeks after the vasectomy, I had fire in my groins, severe nauseating scrotal pain and felt like my rectum/perineum was going to rip apart from the inside. I am currently not going to consider any further procedure until a year, but think I’m heading in the right direction so even then, things would have to be way worse than they are now for me to do anything else. I can work and function very well, albeit with pain. Life is for the most part good, but is made more difficult because I hurt. Not ideal, but I can live like this and fear another procedure could set me back. My local PVPS guy has explained there are surgical options but they come with risks. He also believes most people get better with time, maybe not 100% but to a point they can live with. This board does have many men that trend better with time, so I remain hopeful. Currently I experience “congestion” pain in both testicles, left is worse. I still have some rectal and bilateral groin pain but it’s more an annoyance than a pain, like a sprained muscle. I can live with this pain. Honestly, I found myself skipping with my daughter the other day without even thinking about it until I stopped. Expected a lot more pain, but it never came. Some days I’m at 80%, some days I’m at 90%. I only take Elavil now and the occasional NSAID, so I’ve been able to get off most of the drugs. I will titrate off Elavil over the next few weeks/months. It’s such a low dose, and causes me no side effects, so I’m not really in a hurry to stop taking it yet.