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My story so far - a few things seem to be helping


#21

That’s great news! Glad to hear you are making progress. I think you will continue to improve.

I was in pretty rough shape through 6 months, and then gradually started getting better after I started stretching. I don’t stretch as much as I probably should these days, though I still try at least once a day. The dull ache is almost a non-issue at this point, though I am still on the amitryptaline… 25mg/day. I’d like to get off of it soon, or at least scale back. I am assuming you are not taking this, which is also a good sign, that you are improving without meds. I am not sure if the meds ever really helped that much anyway… besides taking the edge off and making me sleep really hard. One variable at a time. I am also able to lift a lot more and I don’t have to sit on my donut pillow all the time. That is a big improvement for me over the last month.

I really think you’re on your way. I am glad you started the stretches sooner than later! Keep it going and you’ll be running soon. Just take it easy and don’t over do it.

Where this vas issue used to occupy my mind almost all of my waking hours, I hardly think about it anymore. I still wonder how many people this affects that consider themselves active. I did a big bike ride the day before my procedure, and I always wondered if I would have experienced all of this had I kept my muscles loose and relaxed. Anyway, take it easy and thanks for reporting the good news!


#22

Hi @keebler456, @DG469, @PVPSux, can you pls describe how your pain was (location, intensity, congestion vs. neuropathic)?
I am seeing a pelvic floor PT, the 2nd one. She suggests doing the stretching exercises, but with lower intensity. I started about 5-6 weeks ago, and while I felt good while doing the stretches, I had increased pain levels afterwards. Now my new PT advised me to take it easier and do the exercise with less intensity. Can you comment on that? What’s your experience?
She is mostly showing me what kind of exercises there are, and then trying to relax my muscles in the area, but nothing more. I read about trigger points etc - she is not doing that (I haven’t mentioned it, though)


#23

My pain/discomfort seems to be coming from the very top of my testicle and a little bit behind. Much worse on left side. I don’t know if it’s congestion or nerves. I’ve been taking papaya seed powder for about 2 months and have seen slight improvement - not sure if it’s from the powder, exercise, stretching, or just time. I don’t have any experience yet with a PT. I’ve just been trying some pelvic floor stretches I’ve found on this forum and with a youtube search. I try not to get overly intense with it, but generally the stretches feel good - no increase in pain afterward. Good luck. I hope you can get those muscles relaxed and that this gives you some relief.


#24

I’ve had a bit of a relapse this week and I can’t figure out why. Definite return of pain on the left side. I can pinpoint the exact spot and it’s extremely painful to the touch. I think it’s always been this spot, but at times it seems extra sensitive and painful like now. I’ve noticed a small lump in this spot in the past (including now). The original urologist or maybe nurse practitioner didn’t seem overly concerned about the lump when I brought it up 1-2 months post vas and the ultrasound back then came out normal. But I’m starting to wonder if the lump might actually be something concerning. I’m now over 5 months post vasectomy.

If any of you Ohio guys are reading this I would love to get your advice on what to do next/where to go. The only Cleveland Clinic doc listed in the library on this forum is no longer meeting with clients (or at least his office won’t return my call) - Sabanegh. I don’t think I need pain management doc right now - probably someone who could help me with a course of action. Maybe another ultrasound since it’s been a few months. Honestly I’m not sure what else…it just seems like I should probably see a doctor at this point to check out the lump and the pain.

@raising4girls mentioned Shoskes…do you think that would be a good next step for me given my situation?

Anyone know of another option in Ohio? Would be so much better to have a recommendation rather than just find a random urologist.


#25

Sabanegh was recently promoted to President of the entire main campus. I doubt he’s seeing patients any longer. I believe that this lady has replaced him as the CC’s fertility specialist and would be your only reversal option. https://my.clevelandclinic.org/staff/22270-sarah-vij

Shoskes seems to me to be a good man. A bit of an introvert so you won’t get a lot of gushing compassion from him, but I think he’s knowledgeable and talented. The challenge with him is that surgically he’s got one bullet to fire, spermatic cord denervation. He’s the only urologist in Ohio doing this procedure. He’ll offer you an in-office cord block and if your pain goes away, he’ll offer you SCD.

I think some on the forum have seen reversal specialists in Columbus. There’s also thi guy in the Dayton area. http://www.vasectomy-reversal-expert.com/

Right, wrong, or indifferent, I think Dr. Parekatill is the only urologist performing both reversals and spermatic cord denervations. To me, that makes him a viable option since he can discuss pros and cons of each. He trained under the doctor who did my reversal at the Cleveland Clinic back in 2006.