First post here guys…been lurking/reseaching forever. Any opinions welcome. So heres my story.
Never had a vasectomy but hope yous dont mind me posting as my situation is very simular.
Not sure what started pain…took a few hits there over the years as everyone does and usually weight train 4 times per week…my have somthing to do with it but was never sure
First started getting aching,clamping,draging
Pain in left testicle april 2014. Pain was there all the time when sitting and epididymis was tender always when touched and made it pissed off,
Back then it was sore when sitting and wearing jeans or anything that wasnt loose fitting.
Went to doctors then urologists and got the usual epididymis diagnosis.
Given antibiotics 4 week ciproflaxen.
No effect pain continued for months.
First 8 months or so i was getting the aching clamping feeling always when sitting. When standing sometimes it would randomly flair up but alot of the time I was pain free when wearing loose fitting trousers.
So over the next couple of years pain would settle to a certain pattern
*left testicle tender to tough around epi and touching testicle would aggravate
*Sitting would cause pain sometimes maybe few hours per week but not all the time.
*Strange thing…pain would always come if sitting with feet up on sofa as in reclined.
Have to sleep flat on back…pain would come usually when turning to side
Sex and ejectulation pain free…would sometimes flair up a little afterwards but most times fine.
So after nearly 4 years of living with this and years of urologist appointments it was effecting my day to day life enough to push me to get an eppidiymectomy done on 3rd jan 2018. Now I rembember at the time saying if I had a million pounds i would give every penny to fix this. So this was really pissing me off.
Obviously I was made aware pre op that sucess rate wasnt great and the risk pain could get worse. The was no other surgical options given by my uro it was either epiddiymectomy or live with it.
Pain after op next day was very bad was hell to stand and sore enough recovery for first 2 weeks.
By day 17 the serious post op pain was gone and was able to sit in car and go shopping, auct was around 95 percent pain free for 3 days or so. At this point i thought maybe its worked.
Then that night pain comes back…feels like pulled muscle feeling in left testicle very simular to flair ups I had in the past…and simular aching and thobbing to what I had pre op
Over the next week or so the pulled muscle feeling gradually goes away, and for following weeks to come im with simular pain to what i had before localized to bottom of left testicle where the epididymis was or where it was cut joining the vas.
No pain on ejuculation and cant say of it makes pain worse or not
So currently I am now in pain 24/7
When standing usually throbbing/aching 2/10 to 4/10
Cant sit all makes pain go 6/10 then takes hours to settle after
When going to bed and laying flat usually 2/10 and sometimes nearly pain free after i fall asleep
So at the moment holding any weight seems to worsen it…standing is the most comfortable…sitting is the worst…laying not to bad.
Im just over 12 weeks post surgery and finding it very hard mentally and physically to cope day to day…would love to go back to my life pre op.
Waking up everday knowing i will be in pain all day isnt easy and losing hope that i will still recovery more…i spoke to surgeon at 7 weeks post op and he said was still early days and things could still improve.
Sorry for long post so much info I could write all day…
My main question I have and anyone that has had epididymectomy or not…how long would you give it post op before giving up hope on it getting better?
Im now on my 13th week of work sick (driving job so impossible), have family and 2 small babys to look after and day to day is very difficult with pain and worry on my mind 24/7.
Obviously I am not going to rush into another surgery because I know there is no miracle fix and the risks involved…i always new this op might fail and orchi has always been something i will consider in future now more so because current pain levels…scared of denervation and dosnt make sence go me as it feels as though somthing is def messed up on that side.
Look forward to any input…