As I research therapies, I got to wondering if using the diagnosis PVPS is helpful to us. Clearly, we’ve all been injured by vasectomy, no denying that. As I read the Dellon Institutes website and as I speak with Pain Management specialists, it’s clear that they accept vasectomy as a cause, too, even if many urologists do not. But, other surgeries and sources of injury result in chronic pain, and we don’t include them in the diagnosis phrase. For example, there’s no Post Hernia Repair Pain Syndrome and there’s no Post Testicular Removal for Cancer Pain Syndrome, yet these two surgeries DO result in chronic pain in some instance. There are several women’s surgeries that result in nerve damage and chronic pain.
By retaining vasectomy in our diagnosis phrase, we DO put heat on the urological community. We need to do that. But, honestly, I don’t think the urological community offers much hope. Let’s sum up their remedies:
- Reversal - decent results, especially for congestion, and for clean out of damaged tissue.
- Epi Removal - poor results
- Denervation - poor results
- Pain Meds - we can get those from other physicians
With the exception of Dr. Parekatill who offers therapeutic (mega) cord blocks, cryo, and botox, that’s all the urological community offers its victims. I can’t think of any others.
I say all this because so many were surprised, myself included, when my Pain Mgt. physician suggested pulsed RF ablation of my GF. If this works for me, I’ll be elated but also very frustrated that it took 15 months to find out it was even an option. I thought blocks were all he offered. I’m not frustrated with the doc, but frustrated with myself for not seeing him more frequently and pushing him for alternatives. Instead, I’ve been wasting time in urologists offices whom I’ve now concluded offer no real hope.
My urologist even made it seem like denervation is a no-brainer if I have a positive response to a cord block. Given my positive response to Dr. P’s mega block and my positive response to Pain Mgt.'s GF block, I’m sure his in-office cord block would work and suggest denervation, but based on everyone’s experiences here, I can’t imagine taking the risk given other alternatives exist.
At the advice @Acschiro, I read about Dr. Dellon in Baltimore and wish I’d have found him or similar much sooner. His approach seems so much better than what uro’s offer in denervation.
Sorry for the rambling. I guess my point is that I feel that by looking at this as a vasectomy problem (PVPS), I personally have been looking to urologists to cure me. If it’s scrotum related, see a urologist, right?
Not so sure about that anymore.