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Epididymitis or Congestive Pain


#103

@NC79

You mean there’s an honest urologist out there somewhere? Wow. Hang on to him.


#104

My decision was easy. While I was having something done for the pain, I was also pretty convinced that my low T and high PSA were due to sperm being outside the reproductive tract. I wasn’t sure that reversal would fix those problems, but I was more sure that an open-ended conversion would not.

IIRC, Kevin Hauber’s book on his own experience cited his open-ended conversion as an unnecessary and wasted step.


#105

thanks @raising4girls did you read the book?


#106

Yes, it’s old but I think every PVP sufferer should read Kevin’s book. Not the gospel but pretty close.


#107

@NC79, another obvious thing to consider should you choose to have a reversal is just having one side done, assuming your pain is unilateral, which it seems it is.

I know bilateral reversals are very common in the pain world, as are bilateral open ended conversion’s, but there’s at least one guy on this site that a unilateral reversal would’ve likely changed his everything. I’m speaking of @jsh.

I don’t recall anyone I’ve ever read about having a unilateral open ended conversion, but I’m not suggesting it’s never been done.

Just some thoughts.


#108

assuming it didn’t trigger pelvic floor issues, maybe.


#109

Yea, I figured it would be good to get your input here, that’s why I tagged you.

It’s pretty crazy to see guys having reversals on this site, seeing all the different recovery’s, outcomes, etc. Guys that you’d think would have a bad trip don’t, guys you’d suspect wouldn’t do, and everything in-between.

There has to be some sort of balance when we are warning people. Guys like me don’t want to scare the crap out of anyone, but all at the same time, I’m going to be straight up with them.


#110

thanks @RingoStar as for the open ended conversion i will need to confirm if it would bilateral or unilateral… I was under the impression it was just on the left side but this is a huge assumption i would need to confirm. As for reversals i would assume it would be bilateral as well but will get his input on one side reversal and if this is even recommended. @jsh i assume your’s was a full reversal both sides


#111

The One-Side vs. Two-Side debate is interesting.

My reversal uro insisted that bilateral was the way to go primarily because of my PSA and T issues outside the pain. I agreed even though my pain was at least 95% left back in 2005-06.

Fast forward to today, and PM and Uros are only treating my left side.

Hard to know which way to go especially on reversal if self paying. They don’t charge half price for one side vs. two.


#112

I was open ended from start. Its same shit just different name to sugar coat vasectomy, i have suffered extreme pain. Been reversed over 12 months now, still not well. But if you going to get opened up dont bother with open ended crap just get reversal this is my opinion.


#113

Thanks @Loz am under the same gut feeling if am having another surgical procedure it should be a reversal at least i know i put myself back the way i was intended to be and faithfully i can recover fully. But am still in the wait and see phase as am not doing anything until at least 1 yr. My doc thinks if not fully recovered by 9 months post VAS should look at surgical intervention.


#114

Just providing update to the thread and for my own journal. Today am roughly 9 months post VAS,

  • my uro diagnosed me with congestion
  • daily meds include nortrypline at least for another 3 months, turmeric, and papaya seed powder
  • switched to the most part brief underwear
  • am definitely better than i was 6 months ago, visited my uro today and he says left side epi feels good along with the vas site all left sided issues. My biggest complaint outside of the random pains and non linear progress is pain during and post intercourse.
  • my left leg pains have minimized not as tight, routine massage and osteopath have helped along with strecthes.
  • Next steps continue with the nortrypline and reassess in the new yr which will take me to about 1 yr
  • discussing next options with my Uro he says if am going to do a reversal he suggests only doing the left side as i have not had any issues with my right side ever. He would clean up the vas site (granuloma’s and scarring) but leave any clips if any as he doesn’t want to touch areas that aren’t in pain. Am hoping i don’t need to make the decision for reversal but has anyone done a one sided reversal. I understand his train of thought of minimizing the risk as much as possible but am on the fence because i feel if am going to do a reversal and be fertile again i should just do both sides vs the one side. Appreciate any thoughts or feedback.

#115

Hey NC79-

Thanks for the update.
Your inquiries resonate with me, but I don’t have any answers per se, but more questions :-0.

I’m just about 10 months post vas and while I’m overall better than I was 6 months ago, I’m in (hopefully in the middle or the tail end) of a what I’m calling a flare up over the past 4-5 days. My current uro (he did NOT to the original vas!) never really diagnosed me with anything specific, but he fully acknowledges my discomfort and thinks its been too long since the procedure where I’m still experiencing said discomfort. He’s generally saying I prob have some disturbance with the epididymis and the nerves just need to settle down…

Far as meds, never had taken anything more than naproxen, ibuprofen, and acetaminophen (only prior to my nerve block which was very unsuccessful BTW)

Been wearing tighty whities exclusively for 9 moths now!

I was scheduled for a ‘excise’ (what you are referring to as cleaning up any granulomas and scarring) on Oct 11, but really was feeling much better the last few weeks of Sept so I cancelled it on Oct 1st. Now I’m thinking of going back and potentially going back to uro and rescheduling.

Big question- did you or anyone actually ever have this ‘clean up’??? I want to see of any general success rates. My uro hasn’t specifically mentioned a reversal, but that might be the last resort. Really want to wait the year (vas was non Jan 11th) before I get opened up at all, but this roller coaster is just maddening… like you, my pain and the uro has pretty much confirmed (by feeling around) that my pain is isolated to the left side as well…


#116

I don’t really have any thoughts, suggestions, or feedback for you. You really got to sort this out, and/or decide for yourself as there’s potential risk involved.

@Cannon83 is the only guy on this site that comes to mind in regard to has anyone had a unilateral reversal. Seems he had his around 4~ months ago.


#117

hi @Jdubb64321 seems like were in similar situation and timelines my vas was done end of jan… also in the wait and see period but also wondering if i plateaued… am going to slowly wean off any meds to see how i manage without anything. I was never offered a so call clean up procedure… was offered open end conversion or unilateral reversal. If am not congested then could be the same scenario as you of nerve/scar tissue related. I know i did have enlarged epi on left side because it was confirmed by an ultrasound 6 months ago… so during the epi episode maybe nerves were affected… or i developed scar tissue that’s impeding the nerves. That’s the Russian roulette syndrome were dealing with no one really knows until their opened up again…


#118

thanks @RingoStar i actually reached out to cannon83 and he has been very helpful informing me of his experience of a unilateral reversal…


#119

Hey guys throwing the question out to the forum any ideas what is causing this specific pain? On self examination of left side while holding what used to be the family jewels lol… i place pressure with right index finger behind the left testicle and feel my source of pain am not sure if am hitting the epi or vas tube or something else. I then do the same on the right side and feel some discomfort but no where near the left side pain. I know its my primary source of pain because the pain continues well after the self exam. Now the questions… what is the source of pain epi? Site of vas cut? Granuloma? (I don’t feel a lump) or scar tissue. Out of all these potential pain points is there clear distinction between lets say epi pain vs scar tissue vs granuloma? Appreciate any feedack.


#120

Just curious what area of the left testicle is your pain source? Is it side, bottom, upper, or underneath? Mine pain source on right i would describe as on the side but really hard to tell for sure. @NC79


#121

Hey @Ben hope all is well I would have to behind the testie and more so underneath…