I had my right testicle removed three weeks ago. I am happy to say out of all the operations (4 in total in the last 16 months) I FINALLY have significant relief.
The urologist Dr Jarvi in Toronto (highly recommended to anyone by me) said most likely it was my epididymis that was probably causing inflammation.
I tried initially to have a doctor perform an epididymectony on me but none would. Either they would do nothing or purposed a reversal. After the reversal the nerve pain was still there. It did help with congestion, which was pretty damn awful, but never addressed nerve pain.
I also had a denervation that in hindsight I DON'T believe helped but helped clear up a side effect of the reversal. After reversal my right cremasteric muscle started to drag my testicle up into my stomach. The slightest touch would send me through the roof.
I know this all sounds quite dramatic but I am even shocked at how bad things were after rereading through my old posts. I was bedridden and on STD for about 4 months prior to both surgeries.
After the denervation I had two HUGE hydroceles both as large and as heavy as FULL Navel oranges. These also caused a very large hematoma because they were pulling on the wound.
Three weeks ago my life changed for the better. I can now envisage a path without daily unrelenting nerve pain. It was so bad I had forgotten what it feels like to wake up without my pain.
This is a very long answer to the original question. But most of us are contemplating this option after all others.
The point I am making is I think I had everything go wrong and I still benefited hugely from my Orchiectomy. Yes, there is a chance of phantom pain and yes it may not work. My counter to that would be if you are mostly back to well but still taking meds and painkillers and if the nerve around your testicle will not settle I think it is a VERY valid choice. If it feels like constant epididymis pain then have all the offending parts taken out.
My urologist said that he thought about just taking out my epididymis but there was way too much scar tissue and I would likely have to take it out anyways.
I pray for all those faced with the same tough decision. I also would NOT recommend a denervation after a reversal. Either do one or the other not both. Just my unsubstantiated no data to back it up opinion.
But if you are going down this path and have had one or the other and are still on meds as I was just cut to the chase. No pun intended
Surprisingly for any interested there is not much difference in appearance. Dr Jarvi said he does not use implants because of this. My wife asked if we could put a blinking snow globe in there he thought that was pretty funny as did I.
Ask any questions. They are all welcome. Scott my heart goes out to you brother. Hope you have the relief I have found.