I hear you, Mike. Glad the reversal took care of the ball pain. Who performed the reversal if you don’t mind me asking? Did it make your nerve issues worse or not?
I’m in pain for over 2 yrs now and am getting worn out and really worried, kinda’, at this point, realizing the issue is here to stay and will not go away on its own. For the 1st year I had nerve issues around the clock, pins, and needles, stabbings, burning on the skin, inguinal, abdominal referred type of pain, etc. I forgot most of them bc I don’t keep a journal. Ah yes, weird sensation while urinating, which I still have sometimes. At about year 2 all this stopped and the pain was very localized and specific, by my left testicle, pain+deep burning/heat sometimes. I’m guessing it must be the epi or around that area but I don’t have pain with erection or ejaculation. Actually, sex and ejaculation make it feel good a lot of times. So there goes the congestive epididymitis diagnosis. It feels like probably a granuloma or cysts in the vas, nobody that saw me was really interested in diagnosing me beyond scrotal pain go to the pain clinic to try to manage it, you can’t cure it. Somebody on this forum mentioned that at his examination at the Cleveland clinic, they poked every inch of his scrotum for 1/2 hr to determine the exact source of his pain. No urologist was interested in touching my junk. Sitting and laying flat on my back helps, therefore I sleep nights kind of ok now. I ussually wake up feeling no major pain and then I get up, start walking and the pain begins. It is worse in the second half of the day and especially in the evenings. Last night my pain was particularly bad which worries me. Gave up on anticonvulsants and antidepressants, didn’t really help much anyway.
I’m trying to stay active as much as I can, just bought a moonsaddle for my bike so that I can ride with the kids. Feels uncomfortable though.
I’m afraid that another surgery might make things worse or not help, besides the fact that I can’t really take a break, for months, from everything, to recover properly after a serious surgery like a reversal. Money would also be an issue for me at this point in time. I really don’t know what I should do next.