Just needed to add something to this post.
So a couple of weeks ago I visited my GP and she told me my symptoms are nerve related and I am of the belief she is right.
I have been on Lyrica 150mg per day for the last 2 weeks I haven’t noticed any great difference,I still do at times get some days where I feel quite good,but I’ll be honest I don’t really know if I’ve improved a lot since day 1.
Yes my daily pain back at the start was horrible but in recent weeks I have had burning pain (probably a couple of days a week)that is quite uncomfortable.I probably have gotten better but very slowly.
Yesterday Christmas Day I didn’t have a good day with the burning (this also tends to lead to frequent urination)and today is only slightly better,I’m hoping this will subside as normally it tends too.This crap has put such a downer on things.My sex life is not great and does tend to make things worse especially frequent sex and I would tend to think that my pain after sex 24-48 hrs is probably worse than it was at the start.
I just kinda miss doing simple things with my family like today they went for a walk in the country I don’t feel up to it due to my pain,same yesterday I’m sitting there trying to put a happy face on Christmas Day of which I always love but the fucking pain was at me and basically ruined my day.
Most days I’m able to most things and haven’t missed any time from work,I’m self employed in construction and my wife works in a low paid job in the hotel industry so missing work is not an option.But I know that if this shit continues I’m gonna have to think about changing jobs as I reckon the constant moving,pulling,lifting etc can’t be good.
today was the first day I stayed in bed as I find when I have the burning the less movement the better.
My pain I would still say changes month to month.
I’m visiting a Urologist next week,I feel I have been somewhat in denial that this is happening to me,and have I left it too late I only visited my GP a few weeks ago,this was my first second opinion probably should have went earlier?My vas guy was very helpful and I taught he was on top of things he prescribed me drugs ie steriods which I taught where helping,I put a lot of trust in him and in hindsight I probably shouldn’t have,I also feel lost at times in this forum as you guys seem to know so much more about the anatomy,nerves etc of which I feel quite clueless.
I’m thinking to myself of late CAN I HAVE HOPE that I will get somewhat better in time ??it’s also disheartening where I’m living as there is literally no specialists here (this seems more common in the USA to have specialists)
Sorry for the long post I just needed to vent