Donate

Another orchidectomy/orchiectomy


#1

Hi,

Some of you know that I’ve underwent a lot of surgeries, tried a shit load of medication and visited at least 12 urologist and that none of that helped. The last months I got hot flashes and fatigue and after another test I found out my testosterone level dropped 63% in one year to the lowest you can get on the average scale (8.9 nmol/l in US measurements, 258 ng/dl in European). And the pain and liver damage are going the opposite direction so I’m also turning to the last resort to prevent this from killing me. Tomorrow I have an appointment with the hormone specialist to discuss my options (I prefer a shot every week based on what I have read), got a psychiatric report (otherwise no urologist wants to do the operation) and found a urologist who is willing to perform the operation. Only thing I want to decide next is do I go for a bilateral in one shot and do or do I not get prosthetics.

I had a look at other topics here/internet in general and I currently favor both sides in one shot and no prosthetics. But as always any feedback of people with experience is welcome.

K.


#2

I would say def a no to the prosthetics as you had previously an epididymectomy which means your going to be simular to myself and have scar tissue in the scrotom from the incision from that.

As for going for both at once only you can know that yourself in regards to how bad the pain levels currently on each side.

I know after my epididmectomy it was a sure decision to remove my left as pain was so bad…it was terrible and imo was never going to be right.

The immediate recovery from the incision in groin was very rough for me and was nearly 3 weeks before I could walk again without being in alot of pain and hunched over. So me personally I wouldnt like to have to do it again after recovering from one.

Its a touch decision as we know its not guarenteed to work so going in both at once has its risks incase it made things worse.

How bads you pain levels on each side?


#3

Depends from day to day. But at most I don’t notice it for a couple of minutes. Left and right change every couple of hours. But on average, I have lower back pain, my stomach hurts, my upper legs hurt, my groin hurts, … On a scale somewhere around 6 on average I think, most doctors I met don’t use such a scale. So when I was at the urologist on Friday the right side was the worst and he proposed to do that one first, but today the left side is the worst. The pain is mainly in the cord (or at least the pain you can feel when pinching). The low t-levels are maybe an indication that even on one testicle I will have to take hormones for the rest of my life so if that’s the case (which I will find out tomorrow) it will be an easy decision. I read about a guy having pain while cycling with his prostheses and indeed I had a discussion. Balls are fun some times but having something in my body that can cause anti-allergic reactions, can leak, … is probably not worth it.


#4

I suppose doing one at a time would be a safer option just incase things got worse…first few weeks recovery is rough, but honestly its not that bad when you used to having consistant ball pain.

My opinion is that epididymectomy is so destructive that chances are in you favour you willl see an improvement once the damaged testicle/testicles are gone. Having a sewed together testicle im their just aint good…as you have other pains elsewhere outside scrotum not sure how they will be affected with removel but for me i have got improvement as all my pain was in the ball itself.

Good luck


#5

You got only one out? When was your orchidectomy?


#6

Yes left one removed 9 months after epididymectomy on it…10 weeks and 3 days now since it was removed.

My pain was caused by epididymectomy on left side which I had because of long term (4 years) aches in that area epididymis on left side, no vas so right side is ok.

Have had a good relief…not sore anymore to the touch and not sore when walking etc…it was agony before and constant throbbing with any moment.

Im alot better so far but not pain free…I have still kind of like an uncomfortable feeling were testicle was, could be scare tissue or slight phantom pain or still unsettled from testicle being removed Im not really sure. Its kinda low level ache which is worsened when i lift and a little when sitting…its kinda more annoying than painful. My testicle did attach itself onto the scrotum skin after the epididymectomy so I didnt expect it to be an easy recovery after it was yanked out.

I noticed improvment when sitting last 2 weeks so im hopeful some healing will take place slowly over next few months.

I dream and hope I cant get pain free now with time. Im just glad that im not in constant bad throbing anymore.

I have no pain from groin area or incision from the surgery its totally gone, just a scar which is below waistline and dosnt bother me at all.


#7

Good luck @derberlinersmurf, I had left one removed last January after epididymectomy. Still healing from it, so be ready for approx 12 months of healing time. One thing that helped me with scars was silicone gels and sheets, as scar can get a bit itchy


#8

It seems to be an unreasonable question to get a bilateral done… I really look up to having to go in surgery 2 times and recover 2 times for a sure thing…


#9

First testicle is coming out next Wednesday!


#10

Good luck! keep us updated


#11

Good luck @derberlinersmurf. I hope it helps.